So it has been awhile now of testing and all the things people here know about. Just a recap.
2013 began having severe cramping in left hand especially when driving. I also had triggering in the left thumb and hand tingling and numbness. was told it was likely CT. wore the brace triggering went away. In late 2013 early 2014 was at a restaurant and could not hold my knife in left hand. My thumb was not working and I kept dropping it. Thumb seamed to get better with periods of problems with it.
2014 I went to the DR due to periods of extreme fatigue. was dx with migraine without pain and put on Topamax by a neurologist as she agreed with my GP. meanwhile my thumb continued to decrease in mobility and began twitching to the point it kept me up at night. I then noticed a small dimple in the side of my hand by my thumb. GP referred me to a hand surgeon. He sent me for emg and nerve conduction test to confirm suspected ulnar nerve compression. also sent fro two ultra sounds of left thumb for suspected epl tendon rupture. two separate issues going on with my hands surgeon suspected. Ultra sound was neg. both times. emg and ncs showed something going on in my spine. The DR doing the emg recommended an mri of the c spine after poking around in my neck. This worried me because he kept asking if I had any pain or problems in my neck and I kept saying "nope just the hand".
2015 In Jan.I had an mri. It showed a t2 hyper intensive lesion from C6 to T2 with a focal abnormality at C6. later MRI showed no enhancement and MRI of brain was neg. Blood tests were all neg for lupus, lyme etc. etc. all csf testing came back neg. for syphilis, herpes, hiv, human virus any viral or bacterial causes no o bands. cytology was abnormal the causes included meningitis witch was ruled out and MS as well as a couple other things that were ruled out. follow up mri's showed no change.
I had surgery in March for ulnar that my Neurologist pointed out in a report that the emg was a false positive for compression and the hand surgeon said he felt my hand issues were due to my spine. I guess hind sight is 20/20 lol.
my fatigue has continued to get worse and I have been on long term disability now for the last three months. and I am in the process of getting a electric wheelchair as I can not walk for very long, maybe 5 minutes and my legs turn to rubber and I really start to wobble. I have fallen a few times but most time I walk face first into walls. sometimes I go left when I want to go right. I feel like a shut in as I'm not able to get out.
To date I've seen a rheumatologist, neurosurgeon, plastic surgeon (hand), local neurologist, GP, stroke and injury specialist. I was told its not likely ms and its not ms according to McDonald criteria but I was referred and have an appointment in Jan. at an MS clinic in Toronto. lol
Oh well I'm slowly but steadily getting worse so I hope they have an answer for me soon and some form of treatment. Iv said before I'm not sure if this is the place for me to be but you are all so nice there is no other place I rather go. So hope you guys don't mind me sticking around till I get a DX cause its hard when you have no one to talk about this stuff too.
2013 began having severe cramping in left hand especially when driving. I also had triggering in the left thumb and hand tingling and numbness. was told it was likely CT. wore the brace triggering went away. In late 2013 early 2014 was at a restaurant and could not hold my knife in left hand. My thumb was not working and I kept dropping it. Thumb seamed to get better with periods of problems with it.
2014 I went to the DR due to periods of extreme fatigue. was dx with migraine without pain and put on Topamax by a neurologist as she agreed with my GP. meanwhile my thumb continued to decrease in mobility and began twitching to the point it kept me up at night. I then noticed a small dimple in the side of my hand by my thumb. GP referred me to a hand surgeon. He sent me for emg and nerve conduction test to confirm suspected ulnar nerve compression. also sent fro two ultra sounds of left thumb for suspected epl tendon rupture. two separate issues going on with my hands surgeon suspected. Ultra sound was neg. both times. emg and ncs showed something going on in my spine. The DR doing the emg recommended an mri of the c spine after poking around in my neck. This worried me because he kept asking if I had any pain or problems in my neck and I kept saying "nope just the hand".
2015 In Jan.I had an mri. It showed a t2 hyper intensive lesion from C6 to T2 with a focal abnormality at C6. later MRI showed no enhancement and MRI of brain was neg. Blood tests were all neg for lupus, lyme etc. etc. all csf testing came back neg. for syphilis, herpes, hiv, human virus any viral or bacterial causes no o bands. cytology was abnormal the causes included meningitis witch was ruled out and MS as well as a couple other things that were ruled out. follow up mri's showed no change.
I had surgery in March for ulnar that my Neurologist pointed out in a report that the emg was a false positive for compression and the hand surgeon said he felt my hand issues were due to my spine. I guess hind sight is 20/20 lol.
my fatigue has continued to get worse and I have been on long term disability now for the last three months. and I am in the process of getting a electric wheelchair as I can not walk for very long, maybe 5 minutes and my legs turn to rubber and I really start to wobble. I have fallen a few times but most time I walk face first into walls. sometimes I go left when I want to go right. I feel like a shut in as I'm not able to get out.
To date I've seen a rheumatologist, neurosurgeon, plastic surgeon (hand), local neurologist, GP, stroke and injury specialist. I was told its not likely ms and its not ms according to McDonald criteria but I was referred and have an appointment in Jan. at an MS clinic in Toronto. lol
Oh well I'm slowly but steadily getting worse so I hope they have an answer for me soon and some form of treatment. Iv said before I'm not sure if this is the place for me to be but you are all so nice there is no other place I rather go. So hope you guys don't mind me sticking around till I get a DX cause its hard when you have no one to talk about this stuff too.
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