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    KatieAgain

    Anyone hear from her lately?

    Katie, if you read this was just thinking about you and wanted to check in to see how things are going.

    Best,
    LJ
    "It matters not how strait the gate,
    How charged with punishments the scroll,
    I am the master of my fate,
    I am the captain of my soul." ˜William Ernest Henley

    #2
    Me, Too

    I was going to post the same question. I really hope you are doing OK Katie but either way, please let us know how you are.

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      #3
      A friend sent me an email this morning to say check out MSW.

      I am sorry I have not been around, but I am exceptionally sick.

      Gastroparesis as a complication to MS is hell! We are trying to get it under control...but it has been difficult...not to mention depressing...there is so much to learn about this.

      I will try to check in every once in awhile. MS really blows.
      Katie
      "Yep, I have MS, and it does have Me!"
      "My MS is a Journey for One."
      Dx: 1999 DMDS: Avonex, Copaxone, Rebif, currently on Tysabri

      Comment


        #4
        I am really feeling for you, Katie ! Glad to see that you 'shoot from the hip' ! Write what you mean and let the chips fall where they may ! MS sucks ! True dat ! Good luck

        Comment


          #5
          Oh dear Katie, I'm so sorry. Don't know how you can even manage to reply to us, your Gastroparesis sounds horrible. Can't even imagine how awful you feel. But, thank you for responding to us.

          You've been on many hearts and minds, including my own. Was hoping the diet they put you on would do something to help. Obviously, not. Not sure if you received the medication yet? Know you mentioned you had to wait awhile for it, I hope and pray you respond well to it.

          Read up a bit on the gastric pacemaker (Enterra) you mentioned in your other thread, and how it works. (Sends electrical impulses to stomach muscles, to help it contract). It's by the same company that makes the baclofen pump, Medtronic, a device I have. I've also been the recipient of 3 of their pacemakers, including what was the first MRI compatible cardiac pacemaker. (Went through my own bit of hell because of the pacemakers, I had infections - twice) Anyways, (contemplated sharing right now, because you are so sick) but this is something I'd want to know, and think it's only fair you know beforehand ... especially because you are on Tysabri. Hoping you won't even have to consider the thing. But, you can't have MRIs with the device. http://professional.medtronic.com/pt.../#.Vke5coxOnMI As if things aren't crappy enough for you as it is.

          But, maybe you figured out already MRIs might be probem? My MS Specialist still came up with a game plan so I could go on Tysabri when I couldn't have MRIs (but I wimped out and tried something else), maybe yours will too. But, I would've been just starting the med, so my risk factor for PML would've been lower.

          Not fair all you are going though. Praying for you and sending cyber (((hugs)))
          Last edited by Kimba22; 11-14-2015, 06:31 PM.
          Kimba

          “When you change the way you look at things, the things you look at change.” ― Max Planck

          Comment


            #6
            Sending good thoughts and prayers

            Hey Katie
            Hope things are getting better for you. Been missing you here on the forum! Feel better and keep us informed as much as you're up to.
            Hugs!!!

            Comment


              #7
              We are all thinking of you. That device by Medtronics sounds like a hopeful possibility. They make one for bladder dysfunction, too. My urologist wanted to put one in me. It sounded scary to me having a machine inside of me and not being able to find the remote control. Since I am so inept at technology I was afraid it would explode inside of me. Also, the concern of not being able to get an MRI. So I opted against it.

              But, in your situation where your life is at stake, being able to get those nerves working again would be wonderful.

              In the meantime you are enduring and we are in your corner. You are a crusader in showing the world that MS can kill. We won't let the world forget it.

              Comment


                #8
                Still praying for you Katie.
                God Bless Us All

                Comment


                  #9
                  Hi Katie, I am thinking of you and praying for you to get better soon. I am praying for a miracle, you need a break.

                  I wish there was something that I could do for you in the mean time. How is your dog doing? Do you still have the family nearby to help you out? offer support?

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