Hey everyone,
What are your thoughts about Tysabri as a first line drug? My onset was in April and was diagnosed officially in July. Presented with optic neuritis which resolved 99% in about two weeks. Have been clinically asymptomatic since but due to the presentation (evidence of past inflammation, a couple small lesions on my brain and spine as well as one big tumefactive lesion on my brain) my doctor basically wanted to start me on Tysabri at the first appointment. It's a little hard to swallow. She mentioned Copaxone as well when I expressed unease with Tysabri at our last appointment, but I think she is a bit more hesitant about that drug for me. She said in her clinic note that she wanted me to have a positive experience with my drug. I'm warming up to Tysabri a little bit but the however small risks still freak me out and I wonder if I would be better off stress wise to try Copaxone first. I also worry about rebound effect after discontinuing a drug like Tysabri assuming I'm not going to be on it forever.
Anyone else here start Tysabri as their first DMD? What made you decide to go with that? I want to do what is best for myself but I am still unsure which choice that is. I am in a place of acceptance now where I am ready for a DMD, I just don't know how to decide which is best for me. I really would like to minimize the stress in my life as I think it's a big agitator for this disease in general.
My primary care suggested getting a second opinion to help ease my mind a little bit. We all know how difficult getting an appointment with a new specialist is.
Hard to know what to do.
I feel like I'm just going in circles in my head at this point.
What are your thoughts about Tysabri as a first line drug? My onset was in April and was diagnosed officially in July. Presented with optic neuritis which resolved 99% in about two weeks. Have been clinically asymptomatic since but due to the presentation (evidence of past inflammation, a couple small lesions on my brain and spine as well as one big tumefactive lesion on my brain) my doctor basically wanted to start me on Tysabri at the first appointment. It's a little hard to swallow. She mentioned Copaxone as well when I expressed unease with Tysabri at our last appointment, but I think she is a bit more hesitant about that drug for me. She said in her clinic note that she wanted me to have a positive experience with my drug. I'm warming up to Tysabri a little bit but the however small risks still freak me out and I wonder if I would be better off stress wise to try Copaxone first. I also worry about rebound effect after discontinuing a drug like Tysabri assuming I'm not going to be on it forever.
Anyone else here start Tysabri as their first DMD? What made you decide to go with that? I want to do what is best for myself but I am still unsure which choice that is. I am in a place of acceptance now where I am ready for a DMD, I just don't know how to decide which is best for me. I really would like to minimize the stress in my life as I think it's a big agitator for this disease in general.
My primary care suggested getting a second opinion to help ease my mind a little bit. We all know how difficult getting an appointment with a new specialist is.
Hard to know what to do.
I feel like I'm just going in circles in my head at this point.
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