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    Need a new neuro

    Ever just have to laugh?
    Back from hillside MS Specialist. "Do you really need to use your walker?" she asks.
    "No, I just love the glamour." I thought but didn't say.

    I did say, "Well, when I have to negotiate hills and walk long distances over uneven ground, like getting to your office, I need to use it."
    Silence. Made me do all the tests. Told her I can get my leg reflexes to work if I karate chop my knee with my hand. Silence.
    "Now," she said, "if you absolutely want to use Lemtrada, you'll have to have that stent put in your aneurysm first, because it causes blood thinning."
    She didn't mention that a year or so ago.

    "When are you having that done?"
    I told her February, and that the the aneurysm doctor might not do it, if he thinks the aneurysm is going okay. He thinks it's a pretty risky operation for someone with MS.

    "Someone else might have a stroke, and they'll probably recover. You have a stroke, and it might be a disaster."
    So basically, first do no harm.
    Ms MS said, "oh those neurosurgeons worry too much."
    "I'm fairly worried myself," I said.

    Anyhoo, clutching an order for blood tests as long as my arm, out I went. My mum came with me.
    "Can we use that sky walkway to get across the road?" My mother asked.
    "Oh yes, and there's an elevator you can take down to the car park."

    The elevator was two blocks worth of hospital corridor away. Just as we got to the end of our endless journey, just about out the door and into the cab, and then a kindly hospital helper popped out of nowhere, and said, "Would you like a wheelchair?"

    Had to laugh.

    #2
    Good story. Made me laugh, also.
    DXed MS 11/2005, SX started 1986. SX worsened 2003. Primary Progressive/Malignant MS. Copaxone til 06/06, Betaseron til 01/08, Novantrone til 11/07, Tysabri til 01/11 33 doses. Tecfidera 04/16-present. JCV+.

    To God be the Glory!

    Comment


      #3
      A new neuro. A new neuro. That woman is so out of touch with choices you are facing. An MS that's progressing out of control and a brain aneurism that could leave you paralyzed and unable to recognize your family.

      Maybe your neurosurgeon could recommend a neurologist that he respects and could work with to come up with a plan of action. Your MS has been spiraling out of control, the past year. It feels just plain wrong to delay a treatment that you desperately need so you can hurry up and have a surgery that could result in a massive stroke.

      Comment


        #4
        Yes, you desperately need a new neuro. You are faced with a horrible disease and an aneurism. You need to have both of your doctors working together to determine the best course of action. She seems....I don't even know how to describe her. Out of touch? Noncommital? Weird? I will go with weird. Please find someone new. Good luck!
        Diagnosed RRMS 4/7/15, symptoms for 8 months prior. Copaxone 4/27/15

        Comment


          #5
          Thank you, Think. You made me laugh. Always a good thing. Yes, your story makes me 'ponder' but I would NOT be able to hold back my 'snarky' response ! I guess you should begin your search for a new 'specialist' !

          Comment


            #6
            Think-

            I keep telling you...write a book. You have a gift for telling stories. I would buy you book.
            Katie
            "Yep, I have MS, and it does have Me!"
            "My MS is a Journey for One."
            Dx: 1999 DMDS: Avonex, Copaxone, Rebif, currently on Tysabri

            Comment


              #7
              Originally posted by Thinkimjob View Post
              Ever just have to laugh?
              Back from hillside MS Specialist. "Do you really need to use your walker?" she asks.
              "No, I just love the glamour." I thought but didn't say.

              I did say, "Well, when I have to negotiate hills and walk long distances over uneven ground, like getting to your office, I need to use it."
              Silence. Made me do all the tests. Told her I can get my leg reflexes to work if I karate chop my knee with my hand. Silence.
              "Now," she said, "if you absolutely want to use Lemtrada, you'll have to have that stent put in your aneurysm first, because it causes blood thinning."
              She didn't mention that a year or so ago.

              "When are you having that done?"
              I told her February, and that the the aneurysm doctor might not do it, if he thinks the aneurysm is going okay. He thinks it's a pretty risky operation for someone with MS.

              "Someone else might have a stroke, and they'll probably recover. You have a stroke, and it might be a disaster."
              So basically, first do no harm.
              Ms MS said, "oh those neurosurgeons worry too much."
              "I'm fairly worried myself," I said.

              Anyhoo, clutching an order for blood tests as long as my arm, out I went. My mum came with me.
              "Can we use that sky walkway to get across the road?" My mother asked.
              "Oh yes, and there's an elevator you can take down to the car park."

              The elevator was two blocks worth of hospital corridor away. Just as we got to the end of our endless journey, just about out the door and into the cab, and then a kindly hospital helper popped out of nowhere, and said, "Would you like a wheelchair?"

              Had to laugh.
              I saw the punch line coming. It's happened to me too many times. I second the idea of writing a book. Just your daily journal would be a top seller.

              Comment

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