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    bone loss?

    I KNOW this should prob be in another forum, but there are so many of us here.....

    I am wondering if anyone has been told that there is significant bone loss? My dentist is very concerned. I am wondering if it is due to
    - age?
    - MS in general?
    - any of the DMD's I have been on? I checked this on the side effect for the meds, and bone loss was not mentioned

    Any experience with this?
    You are in the driver's seat, but God is holding the map

    #2
    If you've had significant steroids use, it can contribute to bone loss.

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      #3
      Hi zilphia01,

      The most common cause of bone loss when having MS is due to steroids

      This link lists medications that can cause bone loss. If you scroll down past the medications it discusses the issue of bone loss due to steroids.
      http://nof.org/articles/6
      Diagnosed 1984
      “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

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        #4
        I have bone loss too, but have only taken steriods once or twice in my long history of MS. Mine is probably due to aging and the loss of weight bearing exercise. I am SP and can't walk as much as I used to. My arms are also weak and can't lift anything over 5 lbs.

        I have been taking supplements suggested by my naturopathic Dr. to help regain the bone loss and will be checked sometime this year with a bone density test.
        1st sx '89 Dx '99 w/RRMS - SP since 2010
        Administrator Message Boards/Moderator

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          #5
          I was having a lot of burning pain in my mouth. The dentist found I had periodontal disease due to dry mouth which was caused by medications that dry us out. I talked with one of my old MS doctors who also has MS. She told me she lost many teeth due to this problem and over $5000.00 worth of dental work. And she did confirm that the MS is at the root of these problems. See if your dentist will due a deep cleaning and planing. I don't know if you have the same problem, but look into it.
          Marti




          The only cure for insomnia is to get more sleep.

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            #6
            Very common with steroids and with other drugs like Nexium. It can happen with age as well, especially if your family has a history of Osteoporosis.

            My last Dexa Scan showed a little in the jaw. Doc says the mouth is one of the first places it starts. I have another Scan sceduled in a month.

            Make sure you are taking your calcium daily and if you havent already get a Dexa Scan ordered. Simple and fast test.
            Katie
            "Yep, I have MS, and it does have Me!"
            "My MS is a Journey for One."
            Dx: 1999 DMDS: Avonex, Copaxone, Rebif, currently on Tysabri

            Comment


              #7
              Thank you, and Marti......

              Marti,

              The question arose because of loss of bone in my mouth. I have no issues with long bones, etc. The dentist is who is concerned, and sent me to a specialist who I think is CLUELESS about the MS implications.

              I have only had Steroids once, but have been on DMD's for 5 years. I was thinking that is why the mouth bones are deteriorating. Dentist is totally convinced it is because of how I brush and floss. I asked him why there was NO PROBLEM then the first 54 years of my life.

              he changed the subject. hmmmmmmm

              So thank you for your response. I will look up planing. I have no idea what that is.

              karen
              You are in the driver's seat, but God is holding the map

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                #8
                I recently fell and hurt my hand. An X-ray showed no fracture but incidental finding of osteopenia. A Dexascan confirmed osteopenia in my hips and pelvis with increased risk of fracture. definitely have bone loss in jaw too Afraid my teeth will start loosening.
                Mine is related to family history, lots of high dose steroid use, and other meds. On calcium, no other treatments yet.

                Comment


                  #9
                  MS and bone loss

                  I disagree with everyone here. I was just diagnosed with osteoporosis but am completely active and have only had steroids twice. I'm not even menopausal yet!

                  Most of what you read says MSers get bone loss due to disability, inactivity, and steroids, but a study in 2010 looked at newly diagnosed MSers, with no steroid or disability history, and found most of us have more bone loss than healthy controls.

                  The researchers guess it might be related to the low levels of vitamin D found in most newly diagnosed MSers, but they're not sure.

                  Comment


                    #10
                    Originally posted by Mable View Post
                    Most of what you read says MSers get bone loss due to disability, inactivity, and steroids, but a study in 2010 looked at newly diagnosed MSers, with no steroid or disability history, and found most of us have more bone loss than healthy controls.

                    The researchers guess it might be related to the low levels of vitamin D found in most newly diagnosed MSers, but they're not sure.
                    I remember that study. I just find the citation to post.

                    There is a more recent paper on the topic of bone loss with a broader view of inflammatory diseases that doesn't include steroids and inactivity as causes. Instead, it looks at bone loss as a misguided adaptive process in chronic inflammatory conditions.

                    "Using elements of evolutionary medicine, energy regulation, and neuroendocrine regulation of homeostasis and immune function, we work out that bone waste is an adaptive, evolutionarily positively selected program that is absolutely necessary during acute inflammation. However, when acute inflammation enters a chronic state due to the inability to terminate inflammation (e.g., in autoimmunity or in continuous immunity against microbes), the acute program of bone loss is a misguided adaptive program."

                    http://www.ncbi.nlm.nih.gov/pubmed/?...+osteopenia%2C

                    http://multiplesclerosisnewstoday.co...olarly-review/

                    Comment


                      #11
                      Originally posted by jreagan70 View Post
                      I remember that study. I just find the citation to post.
                      Oops! That's supposed to say that I can't find the citation to that study to post so y'all can read it. It will probably come up in a web search for anyone who's interested.

                      The low vitamin D theory and the maladaptive response to inflammation theory both make sense in attempting to explain why some people with MS show bone loss even without steroids and inactivity. Steroids and inactivity just make it worse. Yippee.

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