Originally posted by Boymom123
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I was diagnosed in 2000 as mild or benign and it was that way for quite a long time – and now it isn't. I have been on Tysabri and it was the only DMD that I felt did anything. I would still be on it if I hadn't developed an allergic reaction to it.
My recommendation is not to be lulled by the "mild" diagnosis into complacency like I was. If you qualify for Ty infusions, I would read up on its efficacy and if you feel fairly comfortable, go for it. Nothing currently prevents all damage but the more damage you avoid early on (and I personally look for at least 50-60% efficacy rate), the better off you will be.
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