When I was first diagnosed 18 years ago, the neuro was keen to downplay the potential nightmare ahead.
It was all, "Take your DMD and we'll deal with symptoms if they arise."
Chose (Betaseron 'cos it was three times a week subcuatenous, sounded better than Avonex into the muscle and Copaxone every day. Now there's a way to choose your poison.)
She never mentioned anything too nasty. I was sobbing like a baby, so perhaps the time wasn't right.
I read all about it on the www, as it was, back in the day, bowels, bladder, wheelie walker, cog smog and thought, no, no, no, that won't be me, please don't let it be me.
But it is me.
I took my drugs, exercised, ate right. Most of the time.
Made the ten year milestone in good shape, thought yay, it is benign.
But it all went pear-shaped, and every "pseudo" symptom I ever came back with a vengeance, and has not gone away.
I've been dodgy about Tysabri and Lemtrada, because suddenly the neuros were pushing these drugs despite the risks, where before it was ,"MS, don't worry too much."
I truly think it is time to stop pretending that anything less than those high-power, higher-risk drugs should be first line of attack, not the last gasp.
Treat MS like cancer. No more ponying around.
It was all, "Take your DMD and we'll deal with symptoms if they arise."
Chose (Betaseron 'cos it was three times a week subcuatenous, sounded better than Avonex into the muscle and Copaxone every day. Now there's a way to choose your poison.)
She never mentioned anything too nasty. I was sobbing like a baby, so perhaps the time wasn't right.
I read all about it on the www, as it was, back in the day, bowels, bladder, wheelie walker, cog smog and thought, no, no, no, that won't be me, please don't let it be me.
But it is me.
I took my drugs, exercised, ate right. Most of the time.
Made the ten year milestone in good shape, thought yay, it is benign.
But it all went pear-shaped, and every "pseudo" symptom I ever came back with a vengeance, and has not gone away.
I've been dodgy about Tysabri and Lemtrada, because suddenly the neuros were pushing these drugs despite the risks, where before it was ,"MS, don't worry too much."
I truly think it is time to stop pretending that anything less than those high-power, higher-risk drugs should be first line of attack, not the last gasp.
Treat MS like cancer. No more ponying around.
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