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WELL I THINK IT'S THAT TIME

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    #1

    WELL I THINK IT'S THAT TIME

    I went to my Neurololgist yesterday and I left there rather disgusted. I went in to talk to him about the tremors I had been having in my hands. Granted they only happen every now and then but they still happen and they drive me out of my mind. At first I thought it might be some of my meds, but I've been on my meds for a long time.

    I also wanted to talk to him about AUBAGIO. He admittedly didn't really know much about it and said the Rep has never even called on him. I told him a knew about Lemtrada and Rituxan but I wasn't wild about those. He did agree with that.

    His granddaughter was in the office training, for what I don't know but I just felt like I didn't have his full attention. That's the first time I have ever felt that way with him.

    So with all that being said I'm going to search for a different Neuro. Since I now have my VA care I will try and see one of the Neuros there. From my understanding the VA has an excellent MS care facility.

    I guess all good things must end but I've been feeling like this was coming. I hope I have some luck with the VA.
    Dx'd 4/1/11. First symptoms in 2001. Avonex 4/11, Copaxone 5/12, Tecfidera 4/13 Gilenya 4/14-10/14 Currently on no DMT's, Started Aubagio 9/21/15. Back on Avonex 10/15

    It's hard to beat a person that never gives up.
    Babe Ruth
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    #2
    I hope that you will go for an MS specialist where ever you find one. I am kind of surprised that your current neuro wasn't familiar with all of the DMD's. The fact that the rep for Aubagio hasn't contacted your neurologist makes me wonder if your current neuro actually treats MS regularly. It doesn't matter, since you are going to change neurologists. I saw at least 5 neurologists before I found my current doctor. I am sure that the doctor that I see, currently, is an MS specialist. I feel strongly that I am in 'good hands', now. Good luck

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      #3
      Hope your luck is better then mine

      I saw the VA primary care dr down here in Tallahassee to get the referral for MS drs and he told me I was wasting their time. I did get diagnosed on the outside but still. So ive pretty much given up on getting any care for my MS. Ill just have to muddle through on my own. I just have been to too many heartless drs lately trying to even get in the office for care. I have to drive 4 hours one way just to see a pain management dr. I really hope you have a good dr when you get in the VA

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