going to neurology appointment at 9am tomorrow

[shel67]

Okay, so what can I say or do to help myself depending on what happens? I cannot leave this appointment without an option to do something to ease these symptoms I'm having.

I really don't know what's happening to my body. Why I have not seen any recovery in 4 1/2 months and more symptoms added on.

I don't know if these were all separate attacks or the evolution of one but I know 2 months in, another attack did happen with spasticity on my right side and right and left side tingling /vibration. There's more, can't even list them all. Then about 3 weeks ago I think I was hit again. Eye sight got wired and Imbalance worsened bad. I had some imbalance but this is worse, so are the eyes. I can see, it's just weird, can't explain it.

Anyway I don't know exactly what I'm seeking from writing this. I just don't understand what's happening. I hope to God it's not progressive. It seems odd that it would jump to that when prior to this I re-covered fully and then darn near fully with dizzy,imbalance. All physical stuff fully went away. I know it never did take a few weeks. It always took 2-3 months. Maybe I hang on to inflammation.

What's also weird is in the past it was singular symptoms. Not this so many things at once.

I hope steroids is an option for me since symptoms just kept adding on at different times.

I don't have much faith this doc will give me answers. She's a resident and she seems very green. I will be requesting (demanding) to be referred to the clinics MS specialist.

Since this is my first time ever being treated with steroids I think it's worth a try. Does anyone agree? Should I push or insist on them? (depending on diagnosis of course).

So sorry for this rant but as you can tell, I'm distressed. I appreciate all the help you guys have given me. God bless you all and God help us all.

[22cyclist]

Okay, so what can I say or do to help myself depending on what happens? I cannot leave this appointment without an option to do something to ease these symptoms I'm having.

I really don't know what's happening to my body. Why I have not seen any recovery in 4 1/2 months and more symptoms added on.

I don't know if these were all separate attacks or the evolution of one but I know 2 months in, another attack did happen with spasticity on my right side and right and left side tingling /vibration. There's more, can't even list them all. Then about 3 weeks ago I think I was hit again. Eye sight got wired and Imbalance worsened bad. I had some imbalance but this is worse, so are the eyes. I can see, it's just weird, can't explain it.

Anyway I don't know exactly what I'm seeking from writing this. I just don't understand what's happening. I hope to God it's not progressive. It seems odd that it would jump to that when prior to this I re-covered fully and then darn near fully with dizzy,imbalance. All physical stuff fully went away. I know it never did take a few weeks. It always took 2-3 months. Maybe I hang on to inflammation.

What's also weird is in the past it was singular symptoms. Not this so many things at once.

I hope steroids is an option for me since symptoms just kept adding on at different times.

I don't have much faith this doc will give me answers. She's a resident and she seems very green. I will be requesting (demanding) to be referred to the clinics MS specialist.

Since this is my first time ever being treated with steroids I think it's worth a try. Does anyone agree? Should I push or insist on them? (depending on diagnosis of course).

So sorry for this rant but as you can tell, I'm distressed. I appreciate all the help you guys have given me. God bless you all and God help us all.

So what you are thinking is that the 3 days of steroids didn't work. That sometimes happens, but you still do not usually get NEW symptoms when you have steroids on board however long even just a three day run, especially since you don't have MS specific lesions that are: Lit up during MRI. This is a question for your neurologist. They will not usually give you more steroids in the course of one month. However when the four week mark comes around, they then can.

I think you need to be patient and wait for them to do some more testing, like an MRI of the cervical and thoracic spine. You may need an LP if it comes to them definitely thinking you have MS. All of these things together will help them point to a correct diagnosis.

Good luck
Lisa

[poohb3ar]

hi shel67!
don't know if you'll read this before your morning appt., but i'm praying that all goes well and you get some relief and answers tomorrow.

like cyclist said, be patient. sometimes it takes awhile to figure out what's going on. tests have to be run, results read and passed on to you, etc.

during severe relapses i have had some luck with steroids stopping the progression of sxs.
but your dr. will know best whether they're needed or not since your sxs are so varying in intensity, length and everything. she may be a resident, but remember that means she just finished learning all the latest medical training, too. if you truly don't feel like she's the right dr. for you, then of course, you should request a specialist. is she a neuro? most MSrs see neuros for theirs sxs and relapses.

there are down sides to having too many roids. since i was dxd in 2002, i have had more roids than i can even remember. now i have osteopenia (sp?) bone density loss, next step before osteoperosis (sp?) wow, i know i'm totally not spelling things right, but am in middle of a migraine also!


i know waiting for tests and for the best course of action the dr. feels is best is frustrating.
hang in there! keep us informed how your appt. goes.

take care & may God bless you!

[shel67]

Thanks poohb3... Cyclist, I've ever had steroids ever. I'm hoping they can still be an option due to the length of time I've had the symptoms.

[allHailye2]

Hi shel, when I was dx'd I had been accumulating sx's for 6 months. My neuro rx'd 3 days of steroids, but I only received the first dose because my flushing was unreal & he didn't like the blood results from the test he had me do the next day. Anyway...after that 1 gram of solumedrol & the hell of the week afterwards, all of my sx's went away! I was shocked but very pleased!

What did your Dr say?

[shel67]

Hi shel, when I was dx'd I had been accumulating sx's for 6 months. My neuro rx'd 3 days of steroids, but I only received the first dose because my flushing was unreal & he didn't like the blood results from the test he had me do the next day. Anyway...after that 1 gram of solumedrol & the hell of the week afterwards, all of my sx's went away! I was shocked but very pleased!

What did your Dr say?

she said no. I then asked, so the attack is over, there's no current inflammation? and she said at the time I did MRI, no. So I do not know what to think.