PPMS and tired
I was dx'd at the end of 2013 as PPMS, and I have to say I"m not super-excited (yet) about the Biotin, and not just because I'm jaded. The study I saw, at least, indicated that only 12.6% of subjects responded at all to the massive dose of Biotin--that's a small number and my odds of being in the "lucky" percentage of any group have always been low.
Because so little has been discovered for PPMS, I feel like all I've heard since my dx is that somehow I must not have enough vitamins in my diet--even though I've always tested through the roof on B, D, and other levels and am/was super-healthy: nonsmoker, runner (not anymore of course, but I still do cardio everyday), vegetarian, serious about supplements/acupuncture/PT. I'm just getting tired of breakthroughs that depend on my having been "deficient" (literally or figuratively)--as though PPMS is my fault because I didn't eat enough kale or something.
I'm cautiously interested in the biotin trial, but I've also decided to be wary of trials that make me feel like this dx is all my fault. My psyche, at least, needs that break until something more substantial is published.
Originally posted by JerryD
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Because so little has been discovered for PPMS, I feel like all I've heard since my dx is that somehow I must not have enough vitamins in my diet--even though I've always tested through the roof on B, D, and other levels and am/was super-healthy: nonsmoker, runner (not anymore of course, but I still do cardio everyday), vegetarian, serious about supplements/acupuncture/PT. I'm just getting tired of breakthroughs that depend on my having been "deficient" (literally or figuratively)--as though PPMS is my fault because I didn't eat enough kale or something.
I'm cautiously interested in the biotin trial, but I've also decided to be wary of trials that make me feel like this dx is all my fault. My psyche, at least, needs that break until something more substantial is published.
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