For those of you who have had TM...

[22cyclist]

I have a few questions:

1. How long did you have it?
2. Did you get IVSM for it?
3. What did you first notice was getting better(sensory vs motor)
4. Have you had it more than once?

Thanks. This is my first time with it. I did have IVSM but didn't find that it did that much.

Lisa

[jreagan70]

I did have IVSM but didn't find that it did that much.

Has your neurologist offered you plasmapheresis? It seems to work best when done within 2 to 3 weeks after the start of a relapse, within a week or so of finding that steroids haven't helped. But if IVSM didn't help, it may be your only option. (Acthar gel has shown to help a little as a second treatment, but it has the same time constraints and may not be enough if you already haven't been walking for awhile.) Even if there's only a 30% chance of plasmapheresis helping, that's 30% better than not trying it.

[22cyclist]

Thanks so much I will ask about that!

Lisa