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    #31
    Doggone it Tortis ! I am sorry you are doing/feeling so bad.
    I wish you well
    Linda
    Linda

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      #32
      Thanks for the reply and understanding!
      PEACE
      Tortis

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        #33
        Likewise Tortis, so sorry you are feeling so bad. Sometimes this disease makes me question so many things. Please let us know how you make out Friday.
        Kathy
        DX 01/06, currently on Tysabri

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          #34
          no more tysabri

          Well it looks like I will be stopping Tysabri for good. The last bad side effect never went away and now I am going to multiple drs just to find out how to stop the new pain.

          " Still have nausea problems and a real sharp deep pain in my right upper chest. My Dr. and Ty have been no help at all so far. I have had digestive problems for a long time but it has never been this bad.
          I feel I can not take the chance of taking it again when nobody can tell me how to stop the pain or if it was really the Ty that did it. I am pretty sure it was as I developed a really nasty taste in my mouth and nausea right during the infusion and I got sicker all the way home. I really needed Ty to work and I think it was, but 3 months is just not enough to tell besides who wants to live sick all the time.

          I just want to thank everyone for all their advice and support and to let any new people know that I still believe that Tysabri is the most effective of all the M.S. treatments but not for me I guess. Really do not know where to go from here as I can not tolerate anything else for one reason or another.


          PEACE
          Tortis

          ** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **

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            #35
            I am very sorry Your Tysabri experience just sucks
            Take care
            Linda
            Linda

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