Hi all:
So, I am wondering if any of you who are on Tysabri get cold sores?
In the Tysabri literature it talks about how it is possible (but rare) to get encephalitis or meningitis caused by the herpes virus. (Although many people think it is 'gross' to have 'herpes' about 80% of the U.S. population is thought to have it). I hope that we are all adult enough to realize that and not look down on anyone claiming to have 'herpes' or who chooses to respond to my post.
Was this a concern for any of you? It honestly has me a little more worried than the PML risk. I talked to my doctor about the connection of herpes with encephalitis and meningitis today. She still believes it is a 'remote' and unlikely risk. (She considers the PML still to be a greater 'risk' even though I am JC virus negative).
I'm just wondering if any of you who might have cold sores have worried about this and what your thoughts are. (I'm sorry if I am giving anyone a 'new' worry).
Given that approximately 80% of the population does have this virus, I am also thinking that a lot of people who are on Tysabri likely have it and are doing fine.
I guess it is just reassuring to hear from others. I am so scared of PML / encephalitis / meningitis attacking my brain.
So, I am wondering if any of you who are on Tysabri get cold sores?
In the Tysabri literature it talks about how it is possible (but rare) to get encephalitis or meningitis caused by the herpes virus. (Although many people think it is 'gross' to have 'herpes' about 80% of the U.S. population is thought to have it). I hope that we are all adult enough to realize that and not look down on anyone claiming to have 'herpes' or who chooses to respond to my post.
Was this a concern for any of you? It honestly has me a little more worried than the PML risk. I talked to my doctor about the connection of herpes with encephalitis and meningitis today. She still believes it is a 'remote' and unlikely risk. (She considers the PML still to be a greater 'risk' even though I am JC virus negative).
I'm just wondering if any of you who might have cold sores have worried about this and what your thoughts are. (I'm sorry if I am giving anyone a 'new' worry).
Given that approximately 80% of the population does have this virus, I am also thinking that a lot of people who are on Tysabri likely have it and are doing fine.
I guess it is just reassuring to hear from others. I am so scared of PML / encephalitis / meningitis attacking my brain.
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