Is there any chance one of your neuros would consider starting a DMD empirically just so you don't waste time? After my first MRI my neuro said, "I think the best thing is to treat", the dx came later.
To me, MS means no balance, a right foot that turns inward, a weak right leg, tremors all over my body, cant use my hands, can't remember anything, a bladder that won't squeeze, bowels that let go at the most inconvenient time and fatigue that makes 24 hours not enough time to sleep in the day. If you can tandem walk, you are still doing well.
In spite of your frustration to explain your symptoms, the best outcome is for you to not have MS.
To me, MS means no balance, a right foot that turns inward, a weak right leg, tremors all over my body, cant use my hands, can't remember anything, a bladder that won't squeeze, bowels that let go at the most inconvenient time and fatigue that makes 24 hours not enough time to sleep in the day. If you can tandem walk, you are still doing well.
In spite of your frustration to explain your symptoms, the best outcome is for you to not have MS.
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