New to this site

[Grandma544]

I was diagnosed with MS in March of 2006 at that time I was the admitting manager at a 400 bed hospital. I supervised 59 employees in over 5 areas. I used to walk very fast and people would tell me to slow down. I was hospitalized for my first relapse in March of 2006. This relapse affected my left leg and required the use of a cane. My hospital was not very sympathetic to my diagnosis. I also was struggling with fatigue. I returned to work before I should have. I was suppose to start back part time but due to work demands I was unable. I continued to have relapses every 6 months and they always affected my left leg making it harder and harder to walk. In summer of 2007 my father got really sick and I was trying to take care of him. He died in August and I was given 3 days of bereavement. Within a month of returning to work I had another relapse. I returned to work but within a month was hospitalized for sepsis. I realized at that time I would not be able to continue to work. I continued to have relapses over the next years leaving my legs weak. I now use a wheelchair when I go out. I use a KAFO to walk in the house and my balance is getting worse. I am blessed to have a wonderful husband and family. I just take each day at a time and hope for the best.

[jskmssss]

Grandma....

I was just wondering how old you were at time of diagnosis. I am 54 y/o and not diagnosed but
I started 6 years ago with balance issues and brain lesions. Once again, going for more MRIs,
spinal tap etc...

I am asking your age at time of diagnosis because from what I have read it usually starts at a younger age.

[JerryD]

Grandma, Welcome to the board. I am wondering if you see an MS specialist. Are you taking a DMD? Which one? I hope you find a lot of good information, here. Good luck

[Mamabug]

Grandma, Welcome to the board. I am wondering if you see an MS specialist. Are you taking a DMD? Which one? I hope you find a lot of good information, here. Good luck

Yes; welcome, Grandma. Not nice that you have to be here, but, since you have MS, I'm glad that you found us.

I was wondering some of the same things as Jerry asked. My DMD (disease modifying med) has been very helpful in offering some control over my MS. With it, I do have flares less frequently and less severely. I am also hoping that it is delaying the progression of my MS.

After five years with a general neurologist, I switched to an MS specialist in 2008. That was a good move for me. Although I really liked my neuro, he simply was not as knowledgeable regarding MS as my current doc, and my MS is under better control since the switch.