1. I am going to the doctor's next week with my adult daughter. What kinds of questions should we ask? She has been on Tysabri since 2007 or 08. So far she has been symptom free, told MRI's are clear and that she is negative for JC Virus antibodies. Recently, she has had symptoms, tingling in fingers of one hand, weakness in shower, and now fatigue. Infections were ruled out. Last JC antibody test (negative)was abut six week ago. New MRI shows no PML or MS lesions.
2. Do any of you have relapses without anything showing on MRI? Do you know if someone can have PML without it showing on MRI?
3. Are their any tests for JC Virus, other then routine blood test .. which may show false negative?
4. Is it common to have repeated flares/relapse on Tysabri? Does risk of flares/relapse increase after the first one? What are your experiences?
5. What is the difference between a flare and a relapse?
My daughter wants to continue with Ty, since it stopped her relapses cold.
If you can think of any questions we should be asking doctor, or have any comments, please reply.
2. Do any of you have relapses without anything showing on MRI? Do you know if someone can have PML without it showing on MRI?
3. Are their any tests for JC Virus, other then routine blood test .. which may show false negative?
4. Is it common to have repeated flares/relapse on Tysabri? Does risk of flares/relapse increase after the first one? What are your experiences?
5. What is the difference between a flare and a relapse?
My daughter wants to continue with Ty, since it stopped her relapses cold.
If you can think of any questions we should be asking doctor, or have any comments, please reply.
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