I've been wondering how you are. So glad you posted. You have a good head on your shoulders. You are telling it like it is. I'm so sorry your husband is suffering, too. You are very fortunate because many spouses refuse to be caregivers.
It may not be possible to make your house accessible but it might be possible to make the garage feel more like a home. I sense that you have no plumbing there. A bathroom and a little kitchen would help a lot.
I really think you need your kitty and your bunny rabbit. Maybe someone on craigslist would like to give you one. They could sit right by your bed and you could feed them.
As for the poop, I really understand it's not that easy to just use a commode or bedpan. I don't even know when it is coming out (the poop that is) because I have no sensation. It's impossible to control something when you can't feel it. Thank goodness it doesn't happen all the time but my body sometimes decides to unload while I'm sleeping.
Now this suggestion you may not like but I believe it will help. Try fasting. You could go on a diet of clear liquids for a week. You will kill two birds with one stone. You will give your husband a break and lighten your load by taking off pounds. Then, introduce some grains to keep up your strength. I found quinoa to be really good for my system. I cook it with chicken broth, then sautee it in canola oil and fresh broccoli. Then, if you need a snack have some fruit. Blueberries, oranges, pineapple spears...
I think all the medications we have to take make our poop stink. Mine never used to stink up the bathroom but that has changed. ENOUGH ABOUT POOP.
I just hope you can find a path to bring some sunshine into your life. It won't be easy. I believe NNMS has respite programs for caregivers. Just keep Googling and calling until you find some assistance.
My little cousin, whose mother had a very severe form of MS, is planning an intentional community so people with MS can share caregivers, live around nature and have bunny rabbits.
It may not be possible to make your house accessible but it might be possible to make the garage feel more like a home. I sense that you have no plumbing there. A bathroom and a little kitchen would help a lot.
I really think you need your kitty and your bunny rabbit. Maybe someone on craigslist would like to give you one. They could sit right by your bed and you could feed them.
As for the poop, I really understand it's not that easy to just use a commode or bedpan. I don't even know when it is coming out (the poop that is) because I have no sensation. It's impossible to control something when you can't feel it. Thank goodness it doesn't happen all the time but my body sometimes decides to unload while I'm sleeping.
Now this suggestion you may not like but I believe it will help. Try fasting. You could go on a diet of clear liquids for a week. You will kill two birds with one stone. You will give your husband a break and lighten your load by taking off pounds. Then, introduce some grains to keep up your strength. I found quinoa to be really good for my system. I cook it with chicken broth, then sautee it in canola oil and fresh broccoli. Then, if you need a snack have some fruit. Blueberries, oranges, pineapple spears...
I think all the medications we have to take make our poop stink. Mine never used to stink up the bathroom but that has changed. ENOUGH ABOUT POOP.
I just hope you can find a path to bring some sunshine into your life. It won't be easy. I believe NNMS has respite programs for caregivers. Just keep Googling and calling until you find some assistance.
My little cousin, whose mother had a very severe form of MS, is planning an intentional community so people with MS can share caregivers, live around nature and have bunny rabbits.
Comment