I apologize for probably being one of many asking these same questions but whatever I have has slowly debilitated my life. I am trying to find out if anyone here has symptoms such as these.
For over 30 years, I have enjoyed the epitome of health. I never got the flu or hardly a cold. Then, about 10 years ago, I slowly started to lose my energy. Went to numerous doctors and nothing showed up save for 4 or 5 tests that showed light chain ratios that were off. Then, about a year ago, I started to notice I was dropping things. Not holding onto a glass but dropping small articles of clothing and such. The fatigue got worse and I slowly started to stop "living life" like I used to. I found myself trying to take naps so that I could stay up a bit longer on weekends with my wife. Now, I can't doze off for naps when I want to.
However, what has also been getting worse is this sudden urge to go lie down as if the fatigue wasn't enough, THIS fatigue was like someone anesthetized me. As soon as I laid down, I was out HARD. It was like being in a coma and not moving any body part-worst fatigue imaginable. This would last from 30mins to an hour. Then I would slowly come out of it. I started to get tingling in my arms and it would go away after awhile. I also noticed that if I laid there and sent a mental command to think about one of my arms or legs, it gave me a strange feeling mentally-cant explain it.
As of the past two weeks, these symptoms have gotten progressively worse. I have had all limbs go partially numb, with these weird tremors in all my fingers and toes, tingling on the bottom of my feet and all throughout my hands. It is like my nerve endings are having a fireworks show. Now my fingers have twitches and tremors 24/7. I have had strong chest pain on the left side as well as trying to catch my breath when either walking or speaking although my oxygen was ok at 94. This past Monday, I had my right leg go completely numb off and on for several hours. As I was talking to my wife, I felt a strange feeling in the area of the left side of my head. I went to drink a sip of water and to my astonishment, my swallow mechanism would not engage. It was like it was paralyzed. Then I sat down and my left orbital socket area started to spasm severely for about 4-5 seconds and stop. Few seconds later, I completely lost the entire left neck muscle area and could not hold up my head.
I went to the ER reluctantly because I feel they never find anything but wanted to make sure. During my time in the hospital, I found that I was having issues telling my hands and feet to move. It got to the point that in order to move them, I had to wiggle my shoulders or hips to get the limbs to move. If I let them sit for at least 20-30 seconds, I couldn't move them again. My heart checked out fine and they did a CT scan of my brain and I got an MRI done yesterday. The only thing it shows so far is mild swelling around the optic nerve sheaths and the right frontal lobe has a prominent perivascular space-6x22 in size represented in the subcortical white matter. I read this can be completely normal and sometimes not.
So, in the past few days I have narrowed down these attacks: start to slowly feel even more exhausted than I already do that climbs in intensity until I have to lie down. After lying down, I am out. Its like I start to already dream when I'm awake still. Then the tremors and twitches increase dramatically with the chest pain starting up again. Ill feel my fingers pull inward but not quite a clench. Various muscles contract, let off, and contract again. Eye twitch here, thumb yank there, foot numb then not...at this point is where I have a hard time getting my brain to send messages to get a foot or hand to move which usually I cannot. The chest pain and intensified muscle issues can go anywhere from an hour to four depending and longer. I am also unable to walk without assistance. The next day, I am somewhat able to do my usual fatigued living until it hits again later on. I almost always get these attacks in the afternoon. Has anyone else had anything like this?
For over 30 years, I have enjoyed the epitome of health. I never got the flu or hardly a cold. Then, about 10 years ago, I slowly started to lose my energy. Went to numerous doctors and nothing showed up save for 4 or 5 tests that showed light chain ratios that were off. Then, about a year ago, I started to notice I was dropping things. Not holding onto a glass but dropping small articles of clothing and such. The fatigue got worse and I slowly started to stop "living life" like I used to. I found myself trying to take naps so that I could stay up a bit longer on weekends with my wife. Now, I can't doze off for naps when I want to.
However, what has also been getting worse is this sudden urge to go lie down as if the fatigue wasn't enough, THIS fatigue was like someone anesthetized me. As soon as I laid down, I was out HARD. It was like being in a coma and not moving any body part-worst fatigue imaginable. This would last from 30mins to an hour. Then I would slowly come out of it. I started to get tingling in my arms and it would go away after awhile. I also noticed that if I laid there and sent a mental command to think about one of my arms or legs, it gave me a strange feeling mentally-cant explain it.
As of the past two weeks, these symptoms have gotten progressively worse. I have had all limbs go partially numb, with these weird tremors in all my fingers and toes, tingling on the bottom of my feet and all throughout my hands. It is like my nerve endings are having a fireworks show. Now my fingers have twitches and tremors 24/7. I have had strong chest pain on the left side as well as trying to catch my breath when either walking or speaking although my oxygen was ok at 94. This past Monday, I had my right leg go completely numb off and on for several hours. As I was talking to my wife, I felt a strange feeling in the area of the left side of my head. I went to drink a sip of water and to my astonishment, my swallow mechanism would not engage. It was like it was paralyzed. Then I sat down and my left orbital socket area started to spasm severely for about 4-5 seconds and stop. Few seconds later, I completely lost the entire left neck muscle area and could not hold up my head.
I went to the ER reluctantly because I feel they never find anything but wanted to make sure. During my time in the hospital, I found that I was having issues telling my hands and feet to move. It got to the point that in order to move them, I had to wiggle my shoulders or hips to get the limbs to move. If I let them sit for at least 20-30 seconds, I couldn't move them again. My heart checked out fine and they did a CT scan of my brain and I got an MRI done yesterday. The only thing it shows so far is mild swelling around the optic nerve sheaths and the right frontal lobe has a prominent perivascular space-6x22 in size represented in the subcortical white matter. I read this can be completely normal and sometimes not.
So, in the past few days I have narrowed down these attacks: start to slowly feel even more exhausted than I already do that climbs in intensity until I have to lie down. After lying down, I am out. Its like I start to already dream when I'm awake still. Then the tremors and twitches increase dramatically with the chest pain starting up again. Ill feel my fingers pull inward but not quite a clench. Various muscles contract, let off, and contract again. Eye twitch here, thumb yank there, foot numb then not...at this point is where I have a hard time getting my brain to send messages to get a foot or hand to move which usually I cannot. The chest pain and intensified muscle issues can go anywhere from an hour to four depending and longer. I am also unable to walk without assistance. The next day, I am somewhat able to do my usual fatigued living until it hits again later on. I almost always get these attacks in the afternoon. Has anyone else had anything like this?
Tira
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