Originally posted by marti
View Post
Yes; I go to Dr. Sharon Lynch at KU Med Center in Kansas City. And, yes. It is a lot of driving. I don't regret my choice to change from a Wichita neuro to a KC specialist though, even though Wichita was only 30 minutes away. Dr. Lynch is very knowledgeable about MS, she takes all the time I need, she confirmed my dx in 2008, when she suspected that it might not be correct, she switched meds to one that was much more effective for me.
In short, she is able to help me manage my a-typical MS much more effectively. I have had only one hospitalization since 2008, when I made the switch, instead of the one or two per year that I had between 2002 and 2008. We just decide to make a mini weekend vacation out of my appointments. I schedule them for a Friday or a Monday, and we spend one night in a motel there. We get a good price (I bid $30 or $40 on priceline.com). I wouldn't want to go back to the way my MS and my flares used to be.
I know what you mean about a big city without access to the best doctors. Wichita, KS is about twice the size of Springfield, MO and there are no MS specialists there. I continue to be concerned for you, Marti, that your neuro has taken you off DMD meds. Still wondering if you are in SPMS, are still RRMS. I also wonder if, if a regular drive to KC or St. Louis is too far, if even one visit with one would be helpful to, perhaps, get you on a med that could help you to manage your MS better. Perhaps the new neuro, though, that you will see in April, will have a better handle on good options for you.
Comment