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Kansas City trip planned for MS Specialist appointment

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    Kansas City trip planned for MS Specialist appointment

    I have appointments once every six months. It's a 3-hour drive, one way. Rather than look at that as a hardship, my husband takes a sick day off (for a Dr appointment for a family member). We schedule each appointment for either a Friday or a Monday, so it is next to a weekend day. And, we book a night in a motel and make a mini-vacation weekend out of it.

    We book through Priceline and bid to get an inexpensive room. We've always had good luck with that in KC. In smaller cities, it's hard to get a good deal. We usually get a room in one of the Extended Stay suites and it includes a kitchen. It generally costs us less than $40 a night, including taxes and fees.

    Last time we did that, we were assigned to an Extended Stay suite motel that we had not stayed in before. Each room had an outside door, and it was a two-story motel. We were assigned a room on the second floor, which required climbing a long flight of outdoor stairs, which were covered in snow and ice.

    We went back to the front desk and requested a first floor room, after explaining my MS challenges. The motel clerk talked with another clerk for awhile, and finally assigned us to a room. When we arrived to the half-open door, it was obvious what had caused their delay in making a decision. The room smelled horribly like cigarette smoke, and, in Overland Park, KS (the suburb we were in), it is illegal to smoke in any motel rooms.

    We called the front desk and they explained that was their only main floor room. They apologized for the smell and explained that was the reason it had not been rented out. They were trying to air it out. They offered us either that room, or the option to go to the second story room that we had originally been booked in. Because the room had been prepaid via Priceline, and priceline does not offer refunds (except they did a partial one once for me, in the case of a hospitalization, with official documentation).

    We took that room, and, when the option came, after returning home, to fill out a motel survey online, I explained the problem. So, we got a free room, which we are using in a nicer Extended Stay motel that we've been in before.

    Yay! Maybe it was worth having the awful night, since we get a free one now.
    ~ Faith
    MSWorld Volunteer -- Moderator since JUN2012
    (now a Mimibug)

    Symptoms began in JAN02
    - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
    - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
    .

    - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
    - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

    #2
    That's wonderful that you turn your medical trips into pleasure trips. I too drive three hours to Kansas City for appointments. Mine are every 12 weeks because I'm in a drug study, and every other trip I have appointments two days in a row. My favorite things about 'having to' go to KC are the thrift stores, restaurants, and grocery stores. Yes, grocery stores. Each trip, I make a list of foods I want to buy that I just can't get here in the middle of Kansas. Still don't understand why there are no real grocery stores here.

    My next trip is in April, and if the weather is nice I'll find something to do outside. Unfortunately, I have two or three appointments each day I'm there for the longer visits, but I'll squeeze something in. Time to research for nature centers and that sort of thing. And maybe I'll finally try Bonefish Grill for dinner.

    How nice that you've got a free night's stay. Enjoy your upcoming trip
    Portia

    Comment


      #3
      I am glad that your trip turned out well for you. I have been to Kansas City, once. I believe that it is the home of the Hallmark company. I remember that I went to a 'steak house' restaurant and had a great steak called a 'baseball' cut. That's all I remember about that trip.
      I hope that, for your next trip, you can arrange for a first floor room or a room that is accessible with an elevator. You never know.

      Comment


        #4
        Jerry - Thx. If we ever end up getting pricelined into that motel again, I'll call as soon as we have our reservation to try to make arrangements for an acceptable room. I may even be more proactive and call the motel we like and let them know I'm getting ready to submit a priceline request and ask if they'd be willing to approve that ASAP, if they have openings, because we like their motel best.

        Portia -- found your email address in your profile and emailed you. We're just about neighbors. We live only 30 miles apart. Email me back. Maybe we can get together sometime.
        Last edited by Mamabug; 03-05-2015, 06:46 PM. Reason: Ummm. Because I wanted to change what I wrote.
        ~ Faith
        MSWorld Volunteer -- Moderator since JUN2012
        (now a Mimibug)

        Symptoms began in JAN02
        - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
        - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
        .

        - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
        - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

        Comment


          #5
          Small world, Faith. That's a great price on a hotel room, btw. And a suite with a kitchen no less. I'll have to try harder in the future. It's great being able to cook for yourself and not have to eat out for every meal.
          Portia

          Comment


            #6
            Bravo mamabug, victory and revenge are bittersweet? As if MS, travel and lodging expenses aren't enough ALREADY. Way to go, as if all the 'normal' twist and turns that come with MS aren't enough you have to haggle over hotel accommodations. Good for you.

            Comment


              #7
              Thanks, everyone.

              Appointment went well. Unfortunately, I needed to tell Dr Lynch that my residual symptoms increased, following my July flare.

              We're going to try switching me from Copaxone 20 to Copaxone 40 again. When we tried 6 months ago, my insurance was not covering it, but they changed that. I've been injecting Copaxone 20 only 4x per week, rather than daily, with my doc's permission, due to bad site reactions everywhere but my belly. With the change, I'll be injecting only 3x per week, but, getting a larger dose than I am currently receiving. Hoping it will decrease the fx of my flares.
              ~ Faith
              MSWorld Volunteer -- Moderator since JUN2012
              (now a Mimibug)

              Symptoms began in JAN02
              - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
              - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
              .

              - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
              - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

              Comment


                #8
                Well howdy neighbors. I was born and raised in Leavenworth, so if I were still home it would only be about a 30-40 minute trip for me. I'm actually planning a trip home some time this fall when it is cooler because my favorite furniture store is at the KS Speedway complex.

                Comment

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