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I really need some ones opinion….What should I do next

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    I really need some ones opinion….What should I do next

    Hello I'm a 33 year old female with the following symptoms:
    History Surgeries: (4) C-Sections (Feb. 01, March. 03, Jan. 05 Jan. 13 Full Hysterectomy (August 13, 2013) Also received a blood transfusion Feb. 13

    Symptoms:
    (1) Arms/hands & legs/feet tingling sensation, burning, numbness, pins and needles, ice cold feet, electric shock down legs. This went on for (2) weeks one night I couldn’t rest because the pain was so bad. I went to my doctor after (2) days of this. I couldn’t function are do any of my daily activities. Chest pains. The meds he gave me did not help at all (Gabapentin). I went back in the next week and he walked me over to visit the neurologist. He ask me to come back the next day. I explain my symptoms to the Neurologist in he ordered an MRI in (2) weeks. The next day I begin having very bad chest pains. Then one morning nothing the symptoms just went away.

    (3) Three months before the breakdown I went running and fell because my knee in foot completely gave out on me. A neighbor had to escort me home. I just thought it was due to my potassium being low.

    (4) 1 month before the breakdown I worked out with regular (2) pd weights doing very lite lifting as you can tell and was sore with body aches for (2) weeks.

    (5) My current Symptoms are that I am Very (very) forgetful, forgetting how to spell simple words such as “The”. My husband has always brought this to my attention but I’ve always blown it off until now. The eye opener was when my boss who visits me every morning came in and asked me how my day was going. Then (2) or so hours later I asked out loud Glynn (my boss) must not be here today he hasn’t come to bother me. No one said anything as I check the company website to see if he had clocked in. Then I said he’s here he got here at 5:30 am they all said yeah and he came to talk to you too. I had forgotten that fast. I have to write down things and sometimes I forget where I placed the sheet that I wrote the information on.

    (6) (Current) Dizziness, taken a while to get out of bed.

    (7) (Current) Headaches were my head tightens up really tight then loosens then it does it again.

    (9) (Current) Seeing things out the corner of my eye ( for instance a mice not there)

    (10) (Current) Always tired, bones ache not wanting to get out of bed feeling completely drained. Not wanting to put on clothes. After getting my (2) year old daughter dress to go somewhere I’m completely drained.

    My MRI Results (at the time of the MRI I had none of the Symptoms that caused me to go to the doctor.

    Contrast: Multihance, 17 mL, Butterfly, Manual, INJ

    Study Information: MRIBRAWWO – MRI Brain Including Brain Stem w/o and w/dye

    Indication: 341.9 Demyelinating disease of central nervous system
    unspecified/demyelinating D/O

    Clinical History: Arm and leg numbness. Demyelinating disease.

    Technique: MRI of the brain is performed with and without contrast.

    Comparison: None available

    Findings: The ventricles, basal cisterns and sulci are normal. Diffusion appears normal.
    On FLAIR, there are a few punctate subcortical T2 hyperintensities in the right frontal deep white matter. These are nonspecific and may be associated with gliosis and/or sequela of migraine headaches. Small vessel ischemic change would be unusual in this age group. The findings are also not typical for multiple sclerosis. The periventricular deep white matter appears normal.

    I do not see evidence of hemorrhage, mass or mass effect. No enhancing lesions are seen post-contrast.

    The visualized sinuses and mastoids are clear. The orbital soft tissues are unremarkable.
    Impression: There are a few punctate subcortical T2 hyperintensities in the right frontal lobe of unclear/doubtful clinical significance. The pattern is not consistent with multiple sclerosis. A short term follow-up brain MRI may be considered in 3-6 months to document stability.

    The MRI was taken on Feb 13, 2013. I have called my doctor office but they still don't have the results. I went to pick them up on my own. I don't feel right and I am not the one to linger on my feelings because my family comes first but, I can't shake this feeling. My head feels strange, very moody, it feels heavy my body just doesn't feel right at all. Can you tell me what I could should be my next move since tell this day after calling my doctor office everyday they still haven't gotten in touch with me. I don't understand the MRI could be nothing but my body is saying something diff.

    Please respond

    Thank you,

    #2
    Blood Test

    I have already been tested for everything all neg.....

    anyone???

    Comment


      #3
      Hello TiffanyJ and welcome to MSWorld.

      It doesn't appear your MRI findings indicate Multiple Sclerosis. If you don't have an appointment with your Dr. to discuss the MRI results then please call and make an appointment. Take your report and if you have it, the MRI disc or films.

      Even though you have had blood work to rule in/out other things that does not rule everything out. There is other testing that can be done that might shed some light on what is going on.

      Take care.
      Diagnosed 1984
      “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

      Comment


        #4
        Snoopy

        I thank you for your reply. I have been calling the office for the last (2) weeks. I have a nerve test set up to do on the 15th of this month. But I need a doctor/staff that truly care. Every time I call I have to tell them were the MRI was done at when it was done and so on....they always say that they will call and have them fax it over. I just don't get it...I was thinking about finding another Neurologist. I won't to know if anyone experience the same things and findings on the MRI such as mine?

        Comment


          #5
          Thank you for your reply. I think I will find another Neurologist hopefully one that cares. Thanks! Take care.

          Comment


            #6
            Originally posted by TiffanyJ View Post
            I think I will find another Neurologist hopefully one that cares.
            That would probably be a good idea especially if the current Neurologist (Office) isn't returning calls.

            I won't to know if anyone experience the same things and findings on the MRI such as mine?
            The findings on your MRI:
            there are a few punctate subcortical T2 hyperintensities in the right frontal deep white matter. These are nonspecific and may be associated with gliosis and/or sequela of migraine headaches.
            There are a few punctate subcortical T2 hyperintensities in the right frontal lobe of unclear/doubtful clinical significance. The pattern is not consistent with multiple sclerosis.
            These findings, per the Radiologist, is not consistent with Multiple Sclerosis.

            You obviously need to be evaluated by a Neurologist but there is no way to know if your symptoms are MS related or due to something else. There is no symptom(s) which are unique to Multiple Sclerosis and many other causes need to be ruled out.

            This link may help you understand the other possible causes that need to be considered and ruled out: http://www.nationalmssociety.org/Sym...ns-to-Rule-Out
            Diagnosed 1984
            “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

            Comment


              #7
              I agree with what Snoopy said. If you are not comfortable with your neurologist, find a new one that you are more comfortable with. Your peace of mind is something to take into consideration.
              hunterd/HuntOP/Dave
              volunteer
              MS World
              hunterd@msworld.org
              PPMS DX 2001

              "ADAPT AND OVERCOME" - MY COUSIN

              Comment


                #8
                Please Read

                415 views,since I last told you of my symptoms I had to leave my job were I worked as aprocedure documenter for a chemical plant. I could not comprehend the work. Iwas a contractor going on a year next month. I had left a state job were Iworked for 15 years with benefits wishing to get on for a big time chemicalplant. Now this. I went back to see me doctor he did not listen to me. Told meI was having a headache this doesn’t feel like a headache it feels more like I’mriding on an elevator and it stops that feeling but it continues to go on consistentlyin my head all day long for (2) weeks now. Like I’m in fog and can only seethrough a little bit of the whole. I had a follow up appointment which I missedcaused I showed up at 1pm in it was for 11am. My husband then took me to the emergencyroom because I felt like I was having a stroke. They did little blood work anddid a LP but only tested for meningitis because I live in a very small town andthat is all that they have that they are equipped to test for. I have scoliosisand it hurt so badly.

                I can smelland hear everything I get nauseated. I have a small business as photographerwith 6 weddings and a loud of senior pictures already lined up this year. I hadto cancel them all. I cannot function or take care of my 5 children my youngestbeing 2. I am starting to stutter and having hard times opening potato chipbags or chipping an onion.
                Themedication I am on helps but only pushes it to the back of my mind
                Gabapentin300MG
                Prednisone10MG
                Meloxicam15MG
                Topiramate25MG
                Q-Dryl 25MG
                Prochlorperazine10MG
                My feet gonumb. I have a jerking sensation within me. I left my Job last Tuesday andtoday was the only day I had a little bit of clearance to get on here to typeand ask for help. My husband is going to take to an ER in Houston today. I don’tthink I can go through another LP. Does and one have any of these symptoms?

                Comment


                  #9
                  I am so terribly sorry you are going thru this ordeal, Tiffany! I don't have any words that may help you, but I'm glad you're going to the ER. Hopefully, someone can get to the bottom of your problems. I hope you will get a second opinion from a different neuro even if it means traveling outside your small town.

                  Please keep us posted on what is happening with you!
                  Thinking of you and please take care
                  1st sx '89 Dx '99 w/RRMS - SP since 2010
                  Administrator Message Boards/Moderator

                  Comment


                    #10
                    Hi TiffanyJ,

                    I am sorry you are having such a difficult time

                    Unfortunately, there is little that we can do but offer support. You need to see a Neurologist or some other Dr. that can do testing and interpret your results. The Emergency Room is not helpful for getting to the bottom of your symptoms and a cause.

                    Take care.
                    Diagnosed 1984
                    “Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic

                    Comment


                      #11
                      have you everseen a dr for your coldfeet? i have raynauds and it sounds similar. just a thought i had. also, when you see the dr, make sure you take a complete list of all your symptoms and make sure they are all addressed.
                      hunterd/HuntOP/Dave
                      volunteer
                      MS World
                      hunterd@msworld.org
                      PPMS DX 2001

                      "ADAPT AND OVERCOME" - MY COUSIN

                      Comment

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