Yesterday I was getting a haircut and just as I was leaving one of the stylists called my name and told me the young girl she was cutting was just DX with MS. She asked me if I would mind talking to her. Of course I told her absolutely not I'll talk to her as long she wants.
She told me what lead to her DX and how she was doing. She said her Neuro wanted to start her on Gilenya for her first DMD, which I thought was rather odd to but that's just me. She did make a comment that led me to believe that her Neuro didn't believe MS caused pain. I told her when she saw her Neuro the next time to ask her the question straight out if she believed MS causes pain. I told her if she answers no to find another Neuro.
We had a great conversation, we talked about symptoms and she was curious about what to expect. Of course I told her o two people are a like. I also told her no two people react the same on the medications. She was really curious as to what medications I took for symptom management. I shared with her what I had taken which were the some of the same meds she was currently taking.
The one thing I noticed because it really stood out was attitude. She seemed to have a great attitude about the whole thing. I don't know if it was because it is all so new or she just has that kind of attitude.
But most importantly the best advice I gave her, I told her if she didn't do anything else you HAVE to join MSWORLD.ORG. I sang the praises of this forum and what she could learn about MS in a short period of time. I told her she could also learn how to prepare for her Neuro appointments just by reading some of the posts.
It just goes to show, the person standing in line behind you at the grocery or at the mall or at a fast food joint could have MS. It's a small world. I hope she joins and I hope she does well starting her new life with MS.
I gave her my contact information and told her if she had any questions don't hesitate to call, test or e-mail.
She told me what lead to her DX and how she was doing. She said her Neuro wanted to start her on Gilenya for her first DMD, which I thought was rather odd to but that's just me. She did make a comment that led me to believe that her Neuro didn't believe MS caused pain. I told her when she saw her Neuro the next time to ask her the question straight out if she believed MS causes pain. I told her if she answers no to find another Neuro.
We had a great conversation, we talked about symptoms and she was curious about what to expect. Of course I told her o two people are a like. I also told her no two people react the same on the medications. She was really curious as to what medications I took for symptom management. I shared with her what I had taken which were the some of the same meds she was currently taking.
The one thing I noticed because it really stood out was attitude. She seemed to have a great attitude about the whole thing. I don't know if it was because it is all so new or she just has that kind of attitude.
But most importantly the best advice I gave her, I told her if she didn't do anything else you HAVE to join MSWORLD.ORG. I sang the praises of this forum and what she could learn about MS in a short period of time. I told her she could also learn how to prepare for her Neuro appointments just by reading some of the posts.
It just goes to show, the person standing in line behind you at the grocery or at the mall or at a fast food joint could have MS. It's a small world. I hope she joins and I hope she does well starting her new life with MS.
I gave her my contact information and told her if she had any questions don't hesitate to call, test or e-mail.
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