diagnosed RMMS 2013 took copaxone IPIR doctor fired me NYS

[nobodyspecial]

I am sick and suffering. I have been sick sense 2008.

My PCH sent me to a neuro during this time. I had a slip and fall... with a new and prominent cervical spine injury. Long story short I get diagnosed RMMS 2013, and used copaxone for a few months. I had a severe IPIR and got really sick. (I never recovered)

At this time my PCP abandoned my care and the neuro stopped treating me after months of stringing me long. He said he had no magic nor bright ideas and i had no further options for RMMS treatment. ( he gave me a list of 10 drugs when i started copaxone.He said copaxone was the best and I would not have to pay for it...) He refered me to MY gyn...for hypnosis. They share the copaxone nurse in common. It got really weird from here.

He at that point told me I would not find a doctor in my area. It is over a year later... I HAVE NO DOCTOR.

I got blacklisted. I am writing about my story. I need help. I have NONE. I am sick and suffering. I like in central New York State. Help
please read about my story ... I need reasonable treatment and major help. I really got the shaft. I got blacklisted.

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[CindyLWho]

Hmmm ...

My apologies, I'm not understanding what you are asking and your post is very "seemingly vague" to me ... again, my apologies; I'm certainly not at my best today. I am also failing to understand the acronyms you are using to describe your conditions and the nature/specialty of your providers.

It sounds to me that you are in need of medical attention that you seem to feel you are not receiving; I hope I am correct in this assumption. I have never heard of that/similar as/to/of what you seem to be describing here.

Perhaps, look online for Physician Referral Services in your area and/or contact your local Medical Board. I'm sorry I don't have any further/better advice to offer you.

Hope this helps! I'm very sorry to read of your extensive suffering and I truly hope you find the help you need. Best of luck!

[CindyLWho]

? A Starting Point ?

Perhaps this will help you:

The following 'Sticky' is in here on the 'Main' MSWorld Message Board ...
Sticky: Looking for a neurologist/MS specialist in your area?

[CindyLWho]

In closing, pertaining to your quote here ...

"I got blacklisted. I am writing about my story. I need help. I have NONE. I am sick and suffering. I like in central New York State. Help
please read about my story ... I need reasonable treatment and major help. I really got the shaft. I got blacklisted."

As you explain this (along with the link(s) you were "directing others to"), because it ?sounds? you may be questioning the ?morality? of your situation, you may wish to save yourself some valuable time by scheduling a consultation with the appropriate legal/medical counsel in your area, via the nature of your concerns and that/those of which it pertains in lieu of these/herein on this particular platform (message board(s)/forum(s) here at MSWorld and that/those of which it pertains).

Wishing you the best ...

[nobodyspecial]

my story blacklisted

My primary care doctor said i had chronic fatigue and fibermyalgia, after i had some unknown viral illness. It might have been Ebstien barr virus.
i had slip and fall in this time frame. I got sent to a neurologist... who thought he had to find an answer for everything. He wanted to "be a captain of my ship"
I continued being sick. Tested post for EBV . mris... no specific changes - brain.
spinal most likely hemangenomias... painful for me. and a new and prominent cervical injury...
I get amanidine for fatigue... makes me worse.
i get lumbar puncture... i have one band.

i get diagnosed relapsing remitting multiple sclerosis. I start iv steroids and have about ten choices for MS medication. He says copaxone is the best medicine.
I use copaxne for a few months... painful injections and itching.... but put up with it ... I HOPE>

I have a severe IPIR. felt like boiling hot oil is being poured thru my spine.... i get painful like fire and get over heated. 2 weeks later i had a major hair loss. one year later I call my nerves the copaxone hellp highway. They never stop burning for on thing. i am still on fire.

I got really viral after this even while being on antivirals.

MY neurologist stopped treating me terminating my healthcare. telling me he has no magic nor bright ideas. He tells me at this time I have no treatment options and will not find another doctor in my area. He has my medical records incorrect and he "referred me to my gynacologist for hyptonism. These two doctors share the copaxone training nurse... she is the scribe at my gyns office.

Stress makes my "MS" worse. I have no treatment. I got Blacklisted in NYS. I need a doctor but like the neurologist said I will not find one. HE fired a year ago.

How do you treat ms with no medical care.

The Neurologist
that fired me also say my kid... as she got sick when i did . he wanted to say she had epilepsy ... her symptoms mimic mine.

She has sense gone else where and has autonomic neuropathy.

doing my best to tell my story and get advice and help. i am sick and suffering

I started with heart issues. hmmm

[CindyLWho]

So sorry to hear of your suffering! I truly hope you find the help you need. I wish I could give you more advice ... I'd like to think that I've, at least, supplied you with a starting point? You may want to check out those resources I mentioned in previous posts here if you have not done so already?

[SNOOPY]

Hello nobodyspecial and welcome to MSWorld.

mris... no specific changes - brain.
spinal most likely hemangenomias

I am confused about how a diagnosis of Multiple Sclerosis was made. Was the brain MRI clear or were there findings that indicate MS? The spinal MRI doesn't appear to show any indication of MS.

i get lumbar puncture... i have one band.

One O band is considered normal and would not indicate MS.

http://www.nlm.nih.gov/medlineplus/e...cle/003631.htm

Normally, one or no bands should be found in the CSF.

he "referred me to my gynacologist for hyptonism.

I'm sorry, but this makes no sense to me. A gynecologist does not do Hypnosis.

A Dr. cannot "black list" patients from other Drs. You can go through your Health Insurance carrier for a Dr. that is covered by your health insurance. You can ask your Primary Care Physician for a referral to another Neurologist.

Copaxone, as well as other treatments used for MS can cause hair loss.

I believe you need to see a new Neurologist for a re-evaluation of your diagnosis. My concern is you may have been misdiagnosed.

Take care

[Kimba22]

Hi nobodysoecial,

I'm sorry to hear of your suffering.

I, too, have never heard of a such a thing happening. I can't imagine what it could be in your records that may be causing such difficulties finding another neurologist? Just doesn't make sense that it is because of your reaction to Copaxone. Anyone can have a reaction to any medication, including the DMDs. It happened to me. Did you contact Shared Solutions or even report your specific reaction to the FDA after it happened? I did that after the reaction I had from one of the DMD's. The neurologist who treated me at the time didn't think there was any connection to it. Have since proved him wrong with another neurologist.

CindyLWho gave you some excellent advice. I urge you to follow all of it. You do have a case worth legal counsel if everything you claim is true. Unfortunately, even being sick, you have to become your own advocate to get this resolved. Please do it for yourself, but also for anyone else who becomes a patient of this doctor. You will also have to be an advocate for your child. Believe me, I've been there with my own child.

Here's other information on how to find another neurologist:
http://www.nationalmssociety.org/Tre...ers-in-MS-Care

Good luck to you.