Hello,
I am posting for my sister. She is 42, diagnosed at 20. She has been doing very well and progressing with PT until recently, when she started experiencing severe weakness on right side. She slumps to the right while seated. This started 3 days ago. We wonder whether a change in medication is in order. She had a relapse in August/September. She had discontinued all MS medications in April, I think. She started on Copaxone again in early December. MRI showed no new lesions, yet she continues to experience set backs.
I wonder if she should take Tysabri. I assume she tested positive for JCV in the past because she said the dr did a blood test and said she could not take Tysabri. When I spoke with her this morning, she said "Maybe I should take Gilenya again?" Honestly, I think she only took one or two doses, but was really worried about side effects, so stopped taking it and did not follow up with dr.
I do not know if her neuro (MS specialist) will prescribe Tysabri (given the positive test), and honestly, I do not know which she should take? Should she try Gilenya first, given whatever complication Tysabri may present? We have an appointment on Friday, but I do not expect we will be told -- this is what you should do. Appointments are usually like -- these are your options, what would you like to do, without a lot of explanation in terms of pros/cons.
I am posting for my sister. She is 42, diagnosed at 20. She has been doing very well and progressing with PT until recently, when she started experiencing severe weakness on right side. She slumps to the right while seated. This started 3 days ago. We wonder whether a change in medication is in order. She had a relapse in August/September. She had discontinued all MS medications in April, I think. She started on Copaxone again in early December. MRI showed no new lesions, yet she continues to experience set backs.
I wonder if she should take Tysabri. I assume she tested positive for JCV in the past because she said the dr did a blood test and said she could not take Tysabri. When I spoke with her this morning, she said "Maybe I should take Gilenya again?" Honestly, I think she only took one or two doses, but was really worried about side effects, so stopped taking it and did not follow up with dr.
I do not know if her neuro (MS specialist) will prescribe Tysabri (given the positive test), and honestly, I do not know which she should take? Should she try Gilenya first, given whatever complication Tysabri may present? We have an appointment on Friday, but I do not expect we will be told -- this is what you should do. Appointments are usually like -- these are your options, what would you like to do, without a lot of explanation in terms of pros/cons.
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