When my Neuro and I started talking about switching to Gilenya I started doing my research. One thing that concerned me was herpes could be a problem for anyone taking Gilenya. My Neuro didn't seem at all concerned he said he would just give me Asyclovir (sp).
However, I was just reading some old posts in the Gilenya room and there seem to be some major issues with people with herpes. In fact one person even died because their immune system had been so compromised.
Now I am beginning to wonder if it's even a good idea to take Gilenya. I have not had an outbreak in about 10 years. Would it be a good idea to take Asyclovir(sp) to fight off a possible outbreak before it happens? I feel rather certain an outbreak is imminent when I start Gilenya. That is something I definitely DO NOT want to happen.
I should mention that I am coming off of Tecfidera which is also an immunosuppressant. So going to Gilenya is like adding gas to the fire.
Any and all ideas would be much appreciated!!
However, I was just reading some old posts in the Gilenya room and there seem to be some major issues with people with herpes. In fact one person even died because their immune system had been so compromised.
Now I am beginning to wonder if it's even a good idea to take Gilenya. I have not had an outbreak in about 10 years. Would it be a good idea to take Asyclovir(sp) to fight off a possible outbreak before it happens? I feel rather certain an outbreak is imminent when I start Gilenya. That is something I definitely DO NOT want to happen.
I should mention that I am coming off of Tecfidera which is also an immunosuppressant. So going to Gilenya is like adding gas to the fire.
Any and all ideas would be much appreciated!!
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