Originally posted by Marco
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Well you just have a way with words! lol
I agree with you. I mean - my anger of course sometimes gets the best of me and I let out a rant or vent, like I just did a few minutes ago...
For me though, I can be positive in my overall outlook on my life. But I'm not perfect. I do get mad, I do get upset, I do get frustrated, but what person wouldn't? It's normal to me. I feel that if I didn't let out the way I truly feel at times, then I would just leave it all bottled up and then I would explode.
Like you, I also do research on Multiple Sclerosis - and I attend the MS Conferences on behalf of MSWorld's Conference Center... I love being able to stay up-to-date on what's going on in the world of MS. It's nice to see that they are making strides in MS research, but of course it isn't something that can benefit each person living with MS. But at least it's something?
If you look back to the people that were diagnosed 30+ years ago, they had no treatment options. So at least we do have those options. I've failed my fair share of them as well... but I will keep trying. There is not ONE medication that will help EVERY patient with MS. Is that portrayed to the MS community? No. I think that's where a lot of the confusion and anger is created from. Because if something is 'promising' - who is it promising for? Obviously not Progressive forms of MS, unless there was a study completed specially for that stage of MS. But even those with RRMS, like myself.
Next month, I have to check up with my neuro. If my JCV level keeps rising while I'm on Tysabri, I have to get off of it. What are my options after that? Lemtrada... Even with all of the medications now available for those with RRMS. I've failed every 'type' available almost.
Okay - had to get that out there. Love your outlook Marco. You're so strong. I wish all of y'all the best, and know that you aren't alone in this fight/journey. It's okay to be angry. But don't let is consume you.
xoxo
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