I have been diagnosed with MS for about 3 years now and have had a hard time dealing with how the people around me don't REALLY understand how I can't do some things, or how I get tired etc. Most of my symptoms are hidden and to the people I talk with and interact with day to day would never know I have MS. I used to think I was lucky to have no visible symptoms but I actually think having all invisible symptoms is worse! Nobody understands the constant brain fog that I am in and how I can't remember anything. They don't know how standing for long periods makes me tired beyond belief or why I can be moody.
My husband has been gone for a week traveling for business and so I have been home with my two little kids, while one had a stomach bug, we had 2 snowstorms resulting in 36" of snow that I had to shovel alone all on top of all the other daily household tasks that tire me on a normal day.... I am exhausted beyond belief and he doesn't quite "get it" how difficult the past week has been for me!
Along with my husband, my friends never seem to "get it" when I can't help do what they need or can't go places they want to go. I end up being seen as lazy or rude for not doing things that people want or need me to. My memory being bad makes it really difficult to be a good friend also because I often can't remember things we talked about that are going on in their lives or important dates in their lives etc.
How do you deal with this part of having MS. I am really struggling with this lately and feel stuck!
My husband has been gone for a week traveling for business and so I have been home with my two little kids, while one had a stomach bug, we had 2 snowstorms resulting in 36" of snow that I had to shovel alone all on top of all the other daily household tasks that tire me on a normal day.... I am exhausted beyond belief and he doesn't quite "get it" how difficult the past week has been for me!
Along with my husband, my friends never seem to "get it" when I can't help do what they need or can't go places they want to go. I end up being seen as lazy or rude for not doing things that people want or need me to. My memory being bad makes it really difficult to be a good friend also because I often can't remember things we talked about that are going on in their lives or important dates in their lives etc.
How do you deal with this part of having MS. I am really struggling with this lately and feel stuck!
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