Who doesn't have eye problems?

[Jennagain]

It seems a lot of people have problems with their vision early on in this disease. I have never had vision problems and am wondering if this is the norm?

[SNOOPY]

I mentioned this in your other post.

I am almost 30 years into my diagnosis and this year is the first year MS has affected my vision. It is getting better.

[kelm10]

per se

I per se have no MS vision problems.

My optic nerve never has been affected.

I have a major decrease in my vision on my most, and original, side that has been affected.

This maybe due to I had corrective surgery to them. This was back before they did the Lasik. Back then they did what was called radiokerotonomy (RK.) With a major psuedo flair, a major infection that landed me in the hospital for a week, two surgeries in that week, 6 weeks of home IV antibiotics, another admission to the hospital, and a wound vac as a constant dancing partner, my vision decreased very bad. I have seen two neuro opthamologists and they both agree that my optic nerve was not affected.

The affects of the RK, on that eye, was reversed. I can have it corrected for a minor price compared to what most pay for Lasik. RK is no longer available. First off, no one is going to touch my eyes again unless the surgery is medically necessary. Second of all, I am not paying again for corrective eye surgery.

I think that there are many of us that the eyes are not affected. For me, that is a praise Jesus moment.

[SNOOPY]

My optic nerve never has been affected.

I am the same, My optic nerve has never been affected.

The current issue with my vision is "suspected" of being MS and would be due to a brainstem lesion. No brainstem lesions were found by MRI.

[sloth]

According to what they can see on mri and at eye doctor I havent. But they can only explain the white blob in my left eye field of vision (especially when symptomatic) as neurological. Its been there for years.

I did have a short bout of eye pain but have no clue if it was the o.n or not.

The blob can be quite annoying and scarey but it isnt worse just always there when Im tired or ms'ey.

Plus I have cataracts staring young" (since mid 40's) from long term prednisone use. Per eye doctor. Ugh.

[lorib]

When I was first going to the doctor for my diagnosis I had a little bit of a visual issue. My peripheral vision seemed blurry, but it never got worse because I went on steroids soon after.

It's been 11 years and so far my MS hasn't gotten to my optic nerve.

[there]

Never any optic nerve problems nor any other eye problems except getting a little older and needing reading glasses. I got a whole bag of other problems though.

[Eileenf]

Eyesight has tripled in 2 yrs. went from no glasses to glasses with 3 degrees of prism in them with reading also .

[Waydwnsouth1]

I have been having vision problems for the last month or so. I saw my Neuro-Opthalmologist today and she said I had cups on my retina nerves. As is usually when she said that I made a mental note to ask her what that meant but my memory issues kicked in and I forgot to ask. I see her again in six weeks for, what the called, a detailed eye exam. I asked them how much more detailed can you get. I must have looked into 10 different machines. But anyway I guess I will find out more in six weeks.

I have had ON in both eyes early on before I was diagnosed. The "Specialist" I was seeing at the time ordered the tests and told me everything was normal. My current Neuro ordered a copy of the tests and told me the results were nowhere close to being normal. The tests showed I had ON in both eyes. Some "Specialist" he was.

[MarkLavelle]

I have never had vision problems and am wondering if this is the norm?

It certainly seems to be quite common, and I recall something like 50-75% as having optic neuritis, but I've never had any MS-related vision issues...

[Kimba22]

I've never had optic neuritis.

But, I have had diplopia and nystagmus. Thankfully, both have always eventually resolved.

[pb909]

No optic neuritis issues - last eye Dr. appt less than a year ago. But many other issues due to my MS!

[choco]

I had eye problems one summer and that was it. Thank gd never again.

[rdmc]

If you're talking about optic neuritis, I've never had it.
My opthalmologist thinks that's strange, but I've learned from this site, and other reading that only about 1/2 MS patients have optic neuritis.

I do have double vision, which is mostly corrected by prisms in my glasses, but I was told my double vision has nothing to do with optic nerve issues.

[dck696]

I have never had optical difficulties. I was diagnosed RRMS in 2006, presenting with leg weakness an fatigue. I did Rebif for two years, Tysabri for two years, and Betaseron for two years.

I have never, ever had a relapse. Because of this, the absence of optical problems, and the fact that my MRI has been stable with many old but no active lesions except in my cervical spine, my MS specialist has change my diagnosis to PPMS.

Possibly something you should look into as well? Good luck.