My Neuro's office filled out the necessary paperwork and faxed it to Novartis. The nurse contacted me and gave me more information than a normal person could comprehend. Then my Navigator called. Everything she told me was totally contradictory to what the nurse told me. I told her that I am trying to make this switch and you guys seem to be more confused than I am and I am not comfortable with that. I suggested she e-mail the nurse to get their ducks in order and call me back.
Well the nurse called me back today and straightened out the confusion. Then the Navigator called and scheduled my EKG and my lab work. I had already made an appointment with my Neuro-Opthomolgist. I told them all it is URGENT that I start on Gilenya prior to 10/27 when my benefits change. So far it looks as if that shouldn't be a problem.
The only problem I have is I have to drive over a hour to have EKG and aka work then do the same for first dose. If not I will have to pay for the first $125.00 then file all kind of paperwork to be reimbursed.
This will be my 4th DMD and I have never had so much trouble starting on the med. I sure hope the med is better than the people over seeing it.
Just had to rant a little bit. Did anyone else have trouble getting started on Gilenya?
Well the nurse called me back today and straightened out the confusion. Then the Navigator called and scheduled my EKG and my lab work. I had already made an appointment with my Neuro-Opthomolgist. I told them all it is URGENT that I start on Gilenya prior to 10/27 when my benefits change. So far it looks as if that shouldn't be a problem.
The only problem I have is I have to drive over a hour to have EKG and aka work then do the same for first dose. If not I will have to pay for the first $125.00 then file all kind of paperwork to be reimbursed.
This will be my 4th DMD and I have never had so much trouble starting on the med. I sure hope the med is better than the people over seeing it.
Just had to rant a little bit. Did anyone else have trouble getting started on Gilenya?
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