Is anyone on monthly IV solumedrol?

[MomtoMiracle]

Hi there. I am having a rough time of it. My Neuro. Is in the process of switching me to a new DMD. In the meantime, I was wondering if anyone gets monthly IV Solumedrol? Thanks in advance!

[MSLazarus]

I did it for four years about a decade ago..

It was fantastic for me while it still worked. I was teaching at the time and it really kept me working. So much energy! My house has never been cleaner....

One month it stopped working. Boom. I was rushed but, in the years that followed we did try it once in a while and it never worked again. It has helped several of my friends too.

I have done several chemo drugs since then and now have been on rituxan for several years.

Best of luck.

[MomtoMiracle]

quesrion

MSLazarus, may I ask, are you RRMS?

They are not sure what I am right now...

Thanks!!

[Thinkimjob]

I would love it, but I can't have it. Blood bloody pressure.
I can have every other body-buggering drug on earth, but oooh no, not the 'roids.

The only ones that work - full IV cycle three times, ever, worked a treat.

[MSLazarus]

Hi Mom....

I have never been RRMS. I think it has been a slow, steady progression...with many times that were better then others but never without symptoms since the start.

[sulphur kennel]

Yes!

I was on 1 gram once a month for 4 years and now I'm on it once every 6 weeks. It has kept me upright and mobile so I am happy to be able to take them. My neuro told me to double my calcium and vitamin D while I am on it because 'roids rob your bones of calcium.

When I get an infusion, I feel terrible for 3 days but for the next 41 days I feel mostly good. I know without them I would probably be in a wheel chair right now.