This winning saw must appear in some neurology textbook. I thought when first dxed that it wasn't going to "win" or dominate my life. It would be yet another life altering challenge I would accept with a fighting spirit and focus on victory.
I told my doctor this week that I wasn't finding any refuge from it, I couldn't use the toilet well, have sex, think, be hopeful about the future, there was no domain in my life unaffected. Just, except for peeing all the time, being unconscious.
The medical part is so time sucking. This week three dr. appt., double stick for JC (I said do the titer, well she didn't, so I have to get re-stuck and double bill insurance), MRIs two different days, hour commute, hour trying to find a ride, thirty minutes on hold to make appt.s, call back they need approval number even though I got the script, loving call from Biogen concerned that I missed my infusion (but not that I'm getting co-pay bills that they won't help with because my insurance told them they were covering 100%, two hour phone call, recursive loop).
My dr. interrupts the second paragraph, wanting to script me antiDs. I'm sorry, don't hand out grab bags of Paxil in Triblinka, tear down the [expletive deleted] walls. Finally, this gem of a locution comes out. Why doesn't anyone say HOW to do that?
I told my doctor this week that I wasn't finding any refuge from it, I couldn't use the toilet well, have sex, think, be hopeful about the future, there was no domain in my life unaffected. Just, except for peeing all the time, being unconscious.
The medical part is so time sucking. This week three dr. appt., double stick for JC (I said do the titer, well she didn't, so I have to get re-stuck and double bill insurance), MRIs two different days, hour commute, hour trying to find a ride, thirty minutes on hold to make appt.s, call back they need approval number even though I got the script, loving call from Biogen concerned that I missed my infusion (but not that I'm getting co-pay bills that they won't help with because my insurance told them they were covering 100%, two hour phone call, recursive loop).
My dr. interrupts the second paragraph, wanting to script me antiDs. I'm sorry, don't hand out grab bags of Paxil in Triblinka, tear down the [expletive deleted] walls. Finally, this gem of a locution comes out. Why doesn't anyone say HOW to do that?
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