So I previously asked how RRMS worked and got some understanding while letting the internet be the internet... Hahaaa
So there is a thread on how a user will know I'd they flare. Now about two weeks after my second Ty infusion I was starting to feel much better. It was the first time things had ever gotten better instead of worse since this all started.
In that thread it was mentioned to be considered a flare it must last at least 24 hours (ok) and be separated by 30 days. That's where I'm lost. My neurologist defined my condition as advanced and aggressive and I basically had all the symptoms at the same time. She said that I will not experience remission because I'm always relapsing, unless Ty works. I feel it is.
How can I ever define experiencing relapse? If this is my remission there is still everything' just less. There is no separation or am I basically discovering what's permanent?
Like I said I'm finally feeling significantly better. Sweet. But nothing's gone, just less. Some a lot less
Second: if you go to my profile there is a link of a picture animation I made showing the 24 frames of one MRI view. It's obviously not from software used by radiologists. But all the white blobs. Are those lesions or then what? It is what my neuro noted when she showed me so at least I know it's a bunch of stuff that shouldn't be there.
I kind of want to ask when I relapse will everything come back? Will it be worse, better, the same? But I know it's wait and see.
So there is a thread on how a user will know I'd they flare. Now about two weeks after my second Ty infusion I was starting to feel much better. It was the first time things had ever gotten better instead of worse since this all started.
In that thread it was mentioned to be considered a flare it must last at least 24 hours (ok) and be separated by 30 days. That's where I'm lost. My neurologist defined my condition as advanced and aggressive and I basically had all the symptoms at the same time. She said that I will not experience remission because I'm always relapsing, unless Ty works. I feel it is.
How can I ever define experiencing relapse? If this is my remission there is still everything' just less. There is no separation or am I basically discovering what's permanent?
Like I said I'm finally feeling significantly better. Sweet. But nothing's gone, just less. Some a lot less
Second: if you go to my profile there is a link of a picture animation I made showing the 24 frames of one MRI view. It's obviously not from software used by radiologists. But all the white blobs. Are those lesions or then what? It is what my neuro noted when she showed me so at least I know it's a bunch of stuff that shouldn't be there.
I kind of want to ask when I relapse will everything come back? Will it be worse, better, the same? But I know it's wait and see.
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