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    And I was having such a great year...

    I am sitting here waiting for my pcp office to call me and let me know if my lab tests showed any signs of infection. As I sit here, I have increased fatigue (despite taking Provigil) , another headache, weakness in my legs AND arms, partial numbness in my limbs, occasional myoclonic jerks, and (of course ) difficulty walking. It's been happening off and on for about 2 weeks, but really worsened after a trip to Lancaster (without my rollator) last Saturday.

    I have been doing so well, this school year, that I'm really not prepared for this. I hoped that things would just get better, until this week proved the opposite. :-( I guess that is part of the reason I waited until yesterday to contact my doctor. I didn't want to rush into seeing my neurologist if I didn't have to. I'm not even sure who my new neurologist is, now. I got a letter earlier this year from my neurologist (former neurologist, I guess) explaining that he is taking a role of training new doctors. A different neurologist will be seeing me from now on.

    The worst part of this is the timing. I have been "homeschooling" (actually it's an online public school option) my daughter this year, and we are behind. I am having a terrible time trying to get enough rest, work with her, help my son with HIS homework, and try to keep up with life in general. :-( It doesn't help that we are debating whether or not to do ACTUAL homeschool next year or send my daughter to the public middle school with her brother. Her therapist thinks she needs another year at home, if my health will allow it.

    I just want to make it through the rest of this year, right now. I really am tired of having MS. :-(

    Proverbs 31 wannabe
    Isaiah 26:3,4 "Thou wilt keep him in perfect peace, whose mind is stayed on thee: because he trusteth in thee. Trust ye in the Lord forever: for in the Lord JEHOVAH is everlasting strength."

    #2
    Sorry to hear things have gotten worse for you. Hopefully you'll find out soon if there's an infection and get started on something to treat it.

    Hope you feel better soon -- please let us know how you're doing.

    Be well
    Sabrina

    Comment


      #3
      I am really tired of MS too...so I am right there with you.

      I hope you do have an infection that is causing the increase in symptom activity. Because that can quickly be fixed.

      So let's hope for the best and a round of antibiotics. With a nice glass of Chardonnay.
      Katie
      "Yep, I have MS, and it does have Me!"
      "My MS is a Journey for One."
      Dx: 1999 DMDS: Avonex, Copaxone, Rebif, currently on Tysabri

      Comment


        #4
        New twist on the situation: Saturday morning, I was feeling okay, so I went to get a few items from the supermarket. At some point, I realized that I had pulled a. uscle in my back. I carefully finished picking up what I needed and left quickly.

        I still hadn't heard anything from the doctor's office. They only had a call center for doctors who were on call. The chiropractor was closed, as well.

        I did what I only knew I could do. I took Ibuprofen and kept icing my back every hour or so. I just canceled any other plans (except for taking the dog to the groomer; made my daughter come along and take his leash).

        As of today (Sunday) ,I'm still having more fatigue than I usually do, and I am having headaches. I am still careful about my back (taking Ibuprofen and icing it). I seem to be having less MS symptoms. I think the headaches are, now, coming from the new stomach medication she gave me last week.

        I guess I will just have to play "wait and see" until I hear from the doctor's office. I DO think that I will try to see the chiropractor tomorrow, though. Life is never boring, around here. ;-)

        Proverbs 31 wannabe
        Isaiah 26:3,4 "Thou wilt keep him in perfect peace, whose mind is stayed on thee: because he trusteth in thee. Trust ye in the Lord forever: for in the Lord JEHOVAH is everlasting strength."

        Comment


          #5
          homeschooling

          Originally posted by readingteacher View Post
          The worst part of this is the timing. I have been "homeschooling" (actually it's an online public school option) my daughter this year, and we are behind. I am having a terrible time trying to get enough rest, work with her, help my son with HIS homework, and try to keep up with life in general. :-( It doesn't help that we are debating whether or not to do ACTUAL homeschool next year or send my daughter to the public middle school with her brother. Her therapist thinks she needs another year at home, if my health will allow it.
          Is this your first year homeschooling? If so, have you considered other options besides 'school at home'? Homeschooling does not have to be hard My children are all older now (2 are done but never stopped learning and the youngest [17 in July] is polishing up on a few things when he has time). I began homeschooling them when they were 4, 6 and 8, however I did my own thing. Mostly I just read quality books to them out loud, however I let them each study to their hearts' content whatever subject(s) they liked. This automatically introduced them to so many things. They also did copywork out of the books we read, nature studies, and more. We had a lot of fun together. Well, if you are interested in hearing more just let me know; I don't want to fill the board up with information that's not wanted!!

          Hang in there!! Just take each day as it comes, sometimes each hour as it comes.

          Not officially diagnosed due to non-MS-specific spots on MRIs, but the neurologists all agree it's MS.
          Frustrated. January 2019: finally saw an MS specialist worth seeing. Maybe we'll get to the bottom of this.
          EDSS of 5.5, sometimes 6.0

          Comment


            #6
            jjs,
            I have been doing a lot of "research" on homeschool. I definitely wouldn't do the same thing that I am trying to finish doing now. We are actually registered to attend the CHAP homeschool convention in May. However, my husband has stipulated that my daughter must have completed a certain amount of math lessons in order for her to attend (meaning that he would stay behind with her).

            I really think that it's overwhelming, and next to impossible for us to get her to that point, by now. I really wanted it to be a family event. I am hoping that we will still, somehow, be able to go as a family.

            If you can send me some information via email, I am always open to receiving more ideas for homeschooling. I am struggling with the fact that my husband thinks it is best for my daughter to go to the middle school next year ( despite the advice of her therapist to be at home for one more year). I have the information from the PA homeschool group/association. I just need to get through this year and to be in agreement with my husband.

            FYI : I saw the chiropractor the Monday after my second post. It helped a LOT. Unfortunately, I feel like it would be good to go again. Hanging in there! ;-)

            Proverbs 31 wannabe
            Isaiah 26:3,4 "Thou wilt keep him in perfect peace, whose mind is stayed on thee: because he trusteth in thee. Trust ye in the Lord forever: for in the Lord JEHOVAH is everlasting strength."

            Comment

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