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    Bad Timing!

    Hi I'm a thirty-four year old mother of a two(almost three) year old brilliant little boy. I'm an artist and stay at home mom with so many things going on or about to go on right now that it's crazy. I was planning on going back to school to be a psychologist this fall(but now I'm not so sure).

    My long time boyfriend (father of my son) and I were planning to get married this summer but with concerns about how it will affect my health insurance situation we're now waiting to see how this plays out. My fiance(who is much older than me) is dealing with his own issues right now, in the process of filing for ssdi.

    I've been having neurological symptoms that come, stay around awhile (a month or two) and then go away without a trace since just before i was pregnant.(spring /summer2010) and was laid out tired and incapable of remembering anything for the first two thirds of time i was pregnant. I know many people have complete remission while pregnant and am wondering if anyone on here experienced symptoms during pregnancy.

    I kept blaming my symptoms on my pregnancy but now i don't think that's the case. Actually looking back over the past ten years i think I've had a couple of episodes before then that i never pursued because they cleared up eventually and until recently i didnt have medical insurance.

    Last summer we went to disneyland and i had horrible vertigo and got so sick and tired from the heat that i was confused and lost and strangers kept asking me "are you ok?" then in july I had a series of nasty migraines, culminating in a really weird "headache" that was blurry vision then a stabbing pain that lasted only a few minutes then my left side tongue couldnt taste. when i woke up in the morning my tongue still couldnt taste on the one side so i went to the er and they kept trying to treat me for a migraine, anti nausea etc when i wasnt nauseous but they gave me an mri to make sure it wasnt a stroke. The er doctor refered me to a neurologist but i didnt go because i didnt have 200 dollars or insurance at the time.

    So last fall they implemented ACA Medicaid expansion in Ohio. In February I went to see a PCP for the first time in 15 years. I told the doctor all my recent symptoms and concerns, and he saw my mri because it was in the computer(his office is in the same system as the hospital) he did a partial nerological exam(petting my arms and legs and asking if it felt the same and some other stuff i dont remember)and then he got real uncomfortable quiet and told me I have a disease called MS and he can't treat that so I need to go see a neurologist.
    Now I know he could be wrong cuz its not his specialty, and my neuro appt is this wednesday so i guess its still wait and see, but I'm terrified. And I'm wondering if i should just go on with my life or change plans. And I'm hoping that whatever he says I'll get help for my fatigue, and my cognitive issues so i can still go to school.

    Thanks everyone for reading. I'm really glad I found this website especially because my boyfriend hates to talk about medical issues and i really need to talk about some of this stuff.

    #2
    Welcome Krissykk to MS World! My advice is not to change anything until you are diagnosed by a neurologist since they are the only specialists that can diagnose you. You don't want someone to guess about something you have and you end up having just nonspecific lesions, or vascular lesions. Its hard to say, thats why a neurologist needs to read the MRI himself/herself.

    It seems like you have an appointment in a week. No big deal in the big scheme of things. To apply for SSDI, a diagnosis will help (of anything).

    Let us know how it goes, OK?

    Lisa
    Disabled RN with MS for 14 years
    SPMS EDSS 7.5 Wheelchair (but a racing one)
    Tysabri

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      #3
      Thanks for the reply. Just to clarify the ssdi thing is my fiance, and was just another example of all the big life stuff going on in my world these last couple of years.

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