I was diagnosed july 2012 after first experiencing symptoms february of the same year. Blurry vision, dizziness, massive head ache with a loss of balance and cognitive changes. Had CT done in ER and Virchow-Robins spaces noted. Later after run around by (ex) primary care physician MRI showed lesions on spinal cord on C3 and in the 'white' area of brain. Also positive antibodies in spinal fluid.
Shortly after diagnosis I went numb on my left side from my toes to my rib cage (split me right up the middle) Later that same year I became very sick with the flu and had loss of function in bladder, energy, cognition etc another transverse lesion was found on C5.
I worked as an Neonatal Intensive Care nurse and had to stop because of cognitive losses and extreme fatigue. It was devastating to me. This fall I became weak on my right side, specifically my right hip flexor. A dear friend has just been recently diagnosed as well and we are struggling together to support each other.
With fear of loss of income from my insurance company and SSDI (which I am trying to obtain now) I am hoping to maintain my home. It is all so scary. I was on copaxone to start but changed after severe injection reactions. I'm now on Teriflunomide. I'm hanging on here and hoping for the best never knowing what is coming next! How do you keep a positive attitude never knowing what is coming next? How do you reframe you life so that it has substance and meaning and security again?
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
Shortly after diagnosis I went numb on my left side from my toes to my rib cage (split me right up the middle) Later that same year I became very sick with the flu and had loss of function in bladder, energy, cognition etc another transverse lesion was found on C5.
I worked as an Neonatal Intensive Care nurse and had to stop because of cognitive losses and extreme fatigue. It was devastating to me. This fall I became weak on my right side, specifically my right hip flexor. A dear friend has just been recently diagnosed as well and we are struggling together to support each other.
With fear of loss of income from my insurance company and SSDI (which I am trying to obtain now) I am hoping to maintain my home. It is all so scary. I was on copaxone to start but changed after severe injection reactions. I'm now on Teriflunomide. I'm hanging on here and hoping for the best never knowing what is coming next! How do you keep a positive attitude never knowing what is coming next? How do you reframe you life so that it has substance and meaning and security again?
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
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