Possible Progressive MS treatment

[JerryD]

I read something online about an Australian MSer who has received an effective treatment that needs to be funded to get it into clinical trials. It seems that there is very little information about it on this site.

[JerryD]

The article is in the 'courier mail' from Australia from about a month ago. The story says that researchers focused on the Epstein Barr virus. I don't understand the medicine or science but they seem to have shown some progress in improving the MSer's abilities. I wish I could find out more on this story.

[misslux]

Isn't that the Charcot project stuff?

[Katje]

The Charcot project has been going on for years, ever since I was dx. It always comes out every 2 years but fizzles out as quickly as it comes up. So I pretty much turn a blind eye whenever I see posts about it.

[Thinkimjob]

Try MS Australia on facebook. They have something on there about it, but I couldn't get the YouTube link to play, so I'm none the wiser.

[Min]

Jerry D

Think this may be the link you need for the article in The Courier Mail re Epstein Bar Virus

http://www.couriermail.com.au/...mul...2-122681790065

Hope this is correct and you find it interesting

Regards Min

[Min]

Jerry D Epstein Barr Virus

Here is another link I have found:

www.msra.org.au/QLD-breakthrough-progressive-ms

Min

[Seasha]

Think this may be the link you need for the article in The Courier Mail re Epstein Bar Virus

http://www.couriermail.com.au/...mul...2-122681790065

Hope this is correct and you find it interesting

Regards Min

Min - the link you provided doesn't work! You might want to try again!

[Min]

Courier Mail Link Epstein Barr Virus

Trying again!!!!


http://www.couriermail.com.au/...mul...2-122681790065

If this doesn't work hope the other one is OK

Min

[Min]

EBV Link

No didn't do it right, again.

It's ok when I type it in and I checked before I sent, but for some reason the middle section is not being shown,

Who knows ... the computer elf strikes again!!!!

Hope the other one is ok.

Min

[_Angel_]

Hi there,
Here's a link to a short video that was on the news here recently.

http://au.news.yahoo.com/video/watch...ment-unveiled/

[JerryD]

Thanks Min. I assume that you are very close, geographically, to this story. Any specifics that you can add would be much appreciated. Do you know much about Gary Allen's current condition ?

[Zuzus11z]

I think this is probably something different and at this point it is more of a direction of study/research that viable treatment option:

http://www.msra.org.au/tackling-progressive-ms

[Mable]

You can read Dr. Pender's explanation of his research here: http://multiple-sclerosis-research.b...el-pender.html

It's not the Charcot project; this is something newer. My understanding is that Pender feels that Epstein Barr is not necessarily the problem. It's our inability to manage Epstein Barr. Most other people live just fine with the virus. MSers need our immune system retrained to stop fighting it so aggressively. My guess is that his treatment would benefit RRMSers too.

[JerryD]

It would be great if this would be applicable to all MSer's. But there is a lot of information that has not been investigated. And even though Gary Allen was treated a year ago, some larger trial should be in the works asap.
I would be happy to participate in a clinical trial using Dr. Pender's methodology.