Have been diagnosed now for about 20 months and have found it to have been a real roller coaster of symptoms, emotions and no real answers! So I do hope you guys can shed some light.
I see a really good neurologist but find that most of my questions are answered with "we don't know" which makes me even more worried about the future.
Also the advice given all the time is think positively - this is so hard when one doesn't know how one will be the next day.
There are better days when things look brighter and then I feel guilty as though I am in denial.
Do hope I am making sense with this ramble but just so confused at the moment.
I see a really good neurologist but find that most of my questions are answered with "we don't know" which makes me even more worried about the future.
Also the advice given all the time is think positively - this is so hard when one doesn't know how one will be the next day.
There are better days when things look brighter and then I feel guilty as though I am in denial.
Do hope I am making sense with this ramble but just so confused at the moment.
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