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    husband has MS

    Mike was d'xd in 2003 and was coping ok. For the past year he has decided not to take his medication, making him close to unbearable. I also have a rare bone disease, many major joint replacements and extreme pain. This past summer, I had a hip revision, non weight bearing for six weeks, then four weeks into that, my right femur broke, requiring extensive surgery. Because I have been non weight bearing for seven months, he has been very mean and neglectful. I couldn't afford to go to a rehab, $500 down and $50 a day! Just great! We have been together for 37 years, he's a recovering alcoholic with 20 years sobriety.

    Anyways, I feel like I'm going to lose my mind. He destroying everything in the house, I still am quite laid up and have an aide and therapist here a couple of times a week. Sometimes I'll laugh and call him my saboteur, really not funny, but it's the MS I can accept that, but I just think he's just being mean. I just needed to vent and to clear my head from all the anesthesia. Just feel like crying all the time.

    Thanks for letting me vent...Diane

    #2
    Hi Diane, Sounds like you really have a plate full there I'm sorry that you are going thru your own medical issues, plus trying to cope with your husband and his ms as well.

    Does your hubby know the possible risks of not taking his meds? I don't like to think of what could happen if I went off my meds- being this is a progressive disease and all. I don't feel lucky in taking any chances.


    MS certainly is hard on a marriage, that's for sure. I wish you all the luck in getting better soon, and also hope your hubby gets back on his meds so he can give you a hand with things. Take care, Casino

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      #3
      Hi Diane,

      ((Hugs))). I'm so sorry to hear about everything you have been going through with both your health and your husband. I'm sorry your husband is only adding to your stress right now.

      It's hard to know what may be happening with your husband. Not taking his medication anymore isn't a good thing, either. Only a medical professional might be able help to sort things out and offer possible solutions. But, emotional changes can happen with MS. Here's a link for you from the National MS Society: http://www.nationalmssociety.org/abo...ges/index.aspx

      I would like to welcome you to MS World, but so sorry why you are here. My heart goes out to you.

      Take care ,
      Kimba

      “When you change the way you look at things, the things you look at change.” ― Max Planck

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        #4
        so sorry for how your feeling! I can't give you a answer to make it all better, but i can certainly encourage you to do everything you can to take good care of yourself. Sometimes, in fear I think loved ones sometimes show their emotions through bad behavor.... not right, but it is their only way of coping.

        I wonder if you have any family who could assist you and your husband? I will wish courage, strength, and peace for you both. I understand the need to vent at times, as dealing with MS or any ongoing disease is at times completely overwhelming. Please just give him extra hugs, and words of encouragement. I will hope your positive attitude, will rub off and make both of you feel better.

        Again, I don't have any answers but felt the need to say " hang in, tell those around you how much you appreciate and need them, and rest as much as you possibly can.

        Hugs for you both.... better times will arise!

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