scared and newly diagnosed

[momoftwoboys]

Im terrified that I will have a progressive type of MS and not RRMS. ill give you a brief history of my 6 weeks.
It all started 5 weeks ago landed in the ER due to numbness and weakness on my left side (arm and leg).
the weakness left in a couple of weeks, the numbess is still there not as severe but i've also been getting other symptoms. 3 weeks later I had burning in both of my thighs that would come and go, I noticed my feet were extremely sensitive I had a hard time walking barefoot but now thats gone but my right foot has a swollen feeling to it, my right thigh started to go numb about a week ago and right foot.
all my symptoms are sensory problems right now.

from my MRI all I know is i have a multiple lesions on both sides of my brain but they are mostly on my right side. i still havent seen a ms specialist.. im just freaked out

any input would be nice

[SNOOPY]

Hello momoftwoboys and welcome to MSworld.

What you are describing is behaving as Relapsing/Remitting MS.

In the world of MS "Remission" is a term that does not fit.

Example:

Cancer can go into remission. That means there is no sign or symptoms of the Cancer and the Cancer is no longer active.

This is not true for MS.

Remissions can be complete or partial. Partial remissions are more common than complete.

Remission in MS:

- Not doing as bad as when you were having a relapse.
- Symptoms can come and go.
- You can have residual symptoms
- Even in 'remission' the disease process can continue to do damage.

[Seasha]

Welcome to MSWorld, momoftwoboys!

Being new to MS and experiencing flares can indeed be terrifying. We have all been there, so you have come to a safe place for support and knowledge. We are not doctors and can't tell you if you have a progressive form of MS. Only time will tell, but let me assure you that 85% of people have RRMS.

Here is a link from MS Active Source that explains the types of MS http://www.msactivesource.com/types-...le%20sclerosis

From what you've told us, I can only assume that you are still in a relapse (flare). I myself have had flare-ups in the past that lasted a few months with either full or partial recovery. But, it's really important to remember that our courses are all different!

I would urge you to contact your Dr or neuro and fill them in on what's happening to you. Having a MS specialist is ideal, but some of us here are just as satisfied with a general neuro.

We are here for you and hope you recover quickly! Please take care

[momoftwoboys]

This diagnosis has been extremely terrifying for me I have two young children 3 and 1 and I could say I started having symptoms 3 to 4 months after my youngest was born it actually started with pain in my left eye and blurry vision , i had made an appointment who my optometrist but he said that inflamation could happen after pregnancy and that my eyes had actually gotten better that pain had lasted about 2 weeks, I also had notice my legs felt weird when I would take a hot bath so i guess it was MS . it just so scary thinking about the future

[Merridy]

It isn't always gloomy

You described my first 6months with MS. I went from first Sx to diagnosis in 5 mos. Numbness in my bum started it all, a bout of optic neuritis for kicks, and a doozy of a relapse all within 2 months. I was off work and in shock for 3 weeks.

The good news is that I have had little to no major issues since. I battle fatigue everyday, but not much else. Some odd tingling and numbness now and then, but zero major relapses in over 10 years.

I ran 2 half marathons last year. I never ran much before I was sick. Stay positive.

I read somewhere recently that when symptoms start out sensory in nature the disease course is often milder. Not scientific fact, but it stood out for me since it described my situation very well.

Give yourself time to adjust to your new normal. It is natural.