Hi, I haven't posted in awhile, but have been looking at the site pretty frequently. My story in a nutshell...3 yrs ago, after a time of EXTREME stress, I developed numbness & tingling, which started on one side & moved to all over. Went through a very thorough battery of tests, which ruled out everything else. MRI of my brain showed many lesions, looking like a demylinating condition. I had a clean LP & spinal MRI. I had a follow up brain MRI 1.5 yrs ago, no changes, but the Dr who read the MRI said lesions were consistent with clinical MS.
Anyway, I have been managing my mostly sensory sx with gabapentin & baclofen. In the past month, I have had the sensation that my limbs are falling asleep, doesn't seem to be related to position, & then I get the zinging pain like they're waking up. I waited the entire month & then called my PNP. I just got the call back today that she wants to do my 2 year MRI now & have me do a steroid taper. Of course, today, I don't have the falling asleep limbs, like I have had nearly every day the past month, so of course, now I am doubting how bad it was. At the time, tho, the stress of the strange sensations was distracting & disruptive to my daily life & sleep.
Anyway, I am freaking out! I have hated being in limbo...absolutely hated it! I don't want to have anything wrong with me, but something has to be wrong, right, to have all this bizarre sensory disturbance happen & continue for 3 yrs? Not knowing is awful, but knowing will be awful too.
Whew...just needed to vent. I am waiting for scheduling to call to see when I have the MRI. Thanks, all!
Anyway, I have been managing my mostly sensory sx with gabapentin & baclofen. In the past month, I have had the sensation that my limbs are falling asleep, doesn't seem to be related to position, & then I get the zinging pain like they're waking up. I waited the entire month & then called my PNP. I just got the call back today that she wants to do my 2 year MRI now & have me do a steroid taper. Of course, today, I don't have the falling asleep limbs, like I have had nearly every day the past month, so of course, now I am doubting how bad it was. At the time, tho, the stress of the strange sensations was distracting & disruptive to my daily life & sleep.
Anyway, I am freaking out! I have hated being in limbo...absolutely hated it! I don't want to have anything wrong with me, but something has to be wrong, right, to have all this bizarre sensory disturbance happen & continue for 3 yrs? Not knowing is awful, but knowing will be awful too.
Whew...just needed to vent. I am waiting for scheduling to call to see when I have the MRI. Thanks, all!
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