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Scarred, suspecting I have MS, please help

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    Scarred, suspecting I have MS, please help

    Dear new forum members. let me introduce myself.

    I am 23 year old male from Croatia. I've been fearing for about 3 and a half years now that I have MS. All doctors I've been to told me I don't have it, I learned to live with it and go on, but I just got a new symptom and got scarred again.

    Let me tell how this all happened.

    In 2009 I started having these weird sensations while walking. I'd walk then I'd feel that I am walking on something that is slighty going up and down, like A rubber that is bending as I am stepping on it. It would last for a few seconds then dissapeared. This would happen every few weeks. This symptom lasted several months, then dissapeared totally, then reappeared in 2010 in more intense way, then dissapeared totally and never came back.

    Another symptom, I think it developed in early 2010, I'd wake up with numb fingers, usually pinky and ring finger, sometims only pinky finger, and sometimes the whole hand. This symptom lasts till now, and It is almost everyday. I belive this has a lot to do with how I sleep. When I sleep sideways its sure to happen, when I Lay on my stomach I think I avoid it.

    Then, in july 2010, I got punched into the stomach, in area of solar plexus. Prior to that I was not exercising for 6 months, because I believed I had cervicobrachial syndrome. I am an exercise addict, and i competed 2 years in kickboxing before these symptoms took place. After that punch my abs would shake when I would contract it.

    7 days later I went to start exercising again because I was tired of my shape. After the workout I felt very lightheaded and tired. I went to sleep and that night woke up in terrible fear after a nightmare, all in sweat with skin itching, like some ants were walking on random spots. Since that day I have random fasciculations all over my body every day, but they are far less intense then they were then. The "skin itching" is almost non existent, maybe it happens once a week on a tiny spot, and lasts just a few seconds. I also got another smyptom that is breathing. Every now and then I just feel the need to take a deeper breath which I cant fight off. This symptom also is less intense then it was back then.

    Also another symtpom that got me scarred is trembling of fingers, more in left hand while doing fine moment, in right hand is almost unrecognized. Also If I squat down to paralel against a wall, i feel my legs slightly vibrating, whcih didn't happen before the punch, and it is worse if i do not exercise legs for a few weeks. When I started exercising them again, the symptom is almost gone

    After googling on my symptoms I started to get really scarred. In late 2010 I started seeing eye floaters, black lines that would move across my vision field when I would move my eyes across bright backgrounds. IN 2011 and 2012 they were lesser and non existant, but in 2013 they got back, a little bit more intense. I connected this with swimming in the pool. They first happened after swimming in pool and they reappeared after getting back into the pool this year.

    Somewhere in october This year I noticed palinopsia. I see trails of moving object, like my hand leavig a trail when i weave it infront of my face. It is more intense when in peripheral vision then in direct vision. Which got me googling it and leading to MS back again.

    During these years, I was going to hospitals a lot, did several scans, and all doctors told me I do not have MS, and they told me I do not have ALS.

    I did brain MRI in august 2013. Came back totally ok, neurologist told me my brain is good like that one in a baby, and that I should have no injuries to id (I competed in boxing 2 years from beggining 2008 to end of 2009) and I did that MRI because of headpain after a friendly recreational sparring in august, this year.

    I did a lot of EEGS, last one came back with "in the limits of noral" diagnosis.

    To summarize my current symptoms:

    -fasciculations, mostly in my calves, when resting, can happen everywhere on the body, may be increased while under influence of alcohol, never happened on my tongue. Learned to live with it, doesn't bother me that much.
    - Palinopsia, just recently developed, I see trails of moving objects
    - Eye floaters
    - I wake up with numb hands, or fingers.
    - slight muscle shaking/trembling during contractions, quite noticable in fingers of left hand, such as supporting a weight of a cellphone on 2 fingers, my fingers would twitch a bit. This doesn't happen on the fingers of right hand. Also, legs would vibrate when I'd squat down or something like that If I am not in shape (not exercising for weeks).
    - the urge to take a deeper breath every now and then, these days almost non existant.

    All doctors told me I do not have MS, that I am ok, that I have BFS, etc. I still keep reading on internet about MS, I still keep fearing that I have, please talk to me, please help me, I don know where to go.

    I WOULD VERY MUCH LIKE TO RULE OUT MS IF I DON'T HAVE IT, ONCE AND FOR ALL. I PRAY TO GOD I DON'T HAVE IT.

    Please help me, talk to me, what to do, what can I do, how likely it is that I have it, what's going on with me. I am tired of this, it's brining me down heavily.

    Sorry if I have irritated you with my post, I am just too weak to deal with all of this.

    Thank you all for support.

    #2
    Sorry I've expressed myself the wrong way. I know there are some here that are diagnosed with MS and I can only imagine how they feel, and I am sorry if my post was disrespectful towards them in any way. I am currently going through a tough time and i Just don't know what to do.

    My best wishes for those that are suffering from this bad illness.

    Best regards.

    Comment


      #3
      MS isn't the end ... It's the beginning

      So take a breath ... Find your center ... We've all been exactly where you are.

      Unfortunately, we can't tell you if what you have is or isn't Multiple Sclerosis. In fact, even if you bug the heck out of a neurologist for the next few years it may take that long -- years -- to get a diagnosis. MS is not a simple disease.

      The biggest mistake made by my doctors, well one of the biggest out of several (this was prior to my MS specialist) was the thought that an MRI was the only test needed for diagnostic purposes. WRONG! You need both brain and spinal MRIs, a lumbar punch, possibly a VEP test, maybe a CASLID test to rule out ASL or early onset Alzheimer's, bi-polar disorder, etc.

      My point ... You're not going to get a quick fix but you will find support. You're best sources for info on Multiple Sclerosis are the National Multiple Sclerosis society, Multiple Sclerosis society of America and MSFocus .. As well as this site of course.

      Good luck ... Pray you do have MS. Some of the alternatives don't bare considering.

      Comment


        #4
        I'm sorry you're going through all this, I don't have any worthwhile suggestions (other than to keep on keepin' on) but just wanted to say that in no way, shape or form is your post disrespectful to us MSers. In fact, it's quite the opposite.

        I feel badly for you and really hope you get some answers (preferably NOT MS). In the meantime, this Board is definitely where you can go to receive much-deserved, non-judgmental support. I hope you get some answers soon.

        Jen
        RRMS 2005, Copaxone since 2007
        "I hope to be the person my dog thinks I am."

        Comment


          #5
          be persistant

          Here in this life we need to be "THE SQUEAKY WHEEL", demand answers & hope for the best. MS, as you are being told, is very, very hard to DX. It took over 14 years for me to know what was happening to my body. Granted, for years it was only minor things that came and went, now that it is more determined to stay I finally after numerous MRI's, Lumbar puncture, blood work and not to mention all the ultrasounds of veins in neck, heart tests FINALLY the DX was known.
          It is fustrating and my wish is that you get your answers. I may have MS, but MS does not have me. That is my motto.
          Sue

          Comment


            #6
            tonicezar: It doesn't sound like you have MS. Let me break down the reasons why:

            1. Your rubber band feeling when stepping may have been a tendon. MS symptoms do not begin by physically walking on your feet, or moving a certain way. They are totally random.
            This goes the same for your numb fingers/hand in a certain position of sleep.

            2. Same rule for contacting the abdomen after you were punches in the solar plexus. MS symptoms do not follow a "punch", and do not initiate when you touch them. They are random.

            3. Feeling lightheaded and tired after exercising (especially since you haven't exercised in 6 months, can be normal. Again, feeling lightheaded is not limited to MS and most of us who do exercise do not get this. We generally feel better after exercise.

            4. The itching and ants feeling you had was most likely from anxiety from the bad dream, and your sweating. Breaking out in a sweat is not normal for MSers. We do get parasthesias, but it is not prompted by bad dreams.

            5. Fasciculations can be from overtired muscles, but are generally not a sign of MS. They can be a sign of ALS, but your other signs do not point to ALS.

            6. Needing to take a deeper breath is probably left over from that punch in your solar plexus. The area may have a deep slowly healing bruise.

            7. The trembling fingers you are talking about do not match tremors seen in MS. You may want to see an occupational therapist for these tremors. They do not fit a general definition of any tremor.

            8. Your legs vibrating after exercising may have been from overworking them. We tend to do too much when we start back on an exercise regimen.

            9. Googling symptoms alone will almost all end up as MS as MS has many symptoms and on the internet they are vague.
            You need to stay off of Dr. Google and go see your PCP more often.

            10. The floaters and lines that you have connected to the swimming pool need to be taken to your ophthalmologist. Although they are not compatible with MS, you do want to take care of your sight.

            11. The palinopsia, if that turns out to be what it is, needs to be evaluated by an ophthalmologist. Again, not compatible to MS but certainly important to find out what is going on with your eyesight.

            12. You have a normal MRI. That should make you feel better. You have had a neurologist tell you you don't have MS. I don't think you have MS. I think you have a little too much anxiety, and are on Dr. Google WAY too much.

            Just give your body some time to heal from this punch. Maybe take a break from boxing. You will learn how to sleep so that you don't wake up with your hands asleep. The neurologist has checked you and said you don't have ALS. So two things are great. No MS, no ALS.

            I don't think you need any further testing for MS. Your symptoms seem to be temporary or fading, and not very severe. Try seeing your PCP for something for anxiety and see if some of these symptoms do not go away on their own.

            Take care
            Lisa
            Moderation Team
            Disabled RN with MS for 14 years
            SPMS EDSS 7.5 Wheelchair (but a racing one)
            Tysabri

            Comment

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