While I was only diagnosed with MS a year ago, I have watched first hand what MS has done to my father. I am 43 and he is 72. I see how it has taken the strongest most independent man I know and made him weak and housebound. I want to do whatever I can to postpone my dependence on others.
My MS diagnosis did not take me surprise as I woke up one morning a year ago and the right side of my face was numb, and any food I put in my mouth had no taste and had the texture of feathers. I had pain in my jaw and teeth. The doctor thought I had a sensory Bels Palsey but I insisted that due to family history that I wanted an MRI. It showed a large 2cm lesion and from there my MS journey began.
Now 12 months and one small episode of double vision 6 months ago I have 2 new, much smaller lesions. I guess Rebif isn't working. I am deflated, not depressed because I feel good. Next stop Tysabri if my January MRI isn't better. Waiting for the orders for the JC virus test that should have been in over a week ago but my doctors office has sent them yet. Thinking about a second opinion on my treatment.
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
My MS diagnosis did not take me surprise as I woke up one morning a year ago and the right side of my face was numb, and any food I put in my mouth had no taste and had the texture of feathers. I had pain in my jaw and teeth. The doctor thought I had a sensory Bels Palsey but I insisted that due to family history that I wanted an MRI. It showed a large 2cm lesion and from there my MS journey began.
Now 12 months and one small episode of double vision 6 months ago I have 2 new, much smaller lesions. I guess Rebif isn't working. I am deflated, not depressed because I feel good. Next stop Tysabri if my January MRI isn't better. Waiting for the orders for the JC virus test that should have been in over a week ago but my doctors office has sent them yet. Thinking about a second opinion on my treatment.
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
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