Hello all, here is a glimpse of my new journey that I'm unsure of.
I am 37 years young have 2 children and have been diagnosed with MS a week ago today! I've been under tests for the last year and a half.
I'm still in denial I think and question if I really have it. I'm wondering if anyone else has experienced my symtoms and if your on treatment if so what treatment and how is it working? As for now I'm experimenting with supplements and trying to do better with not eating gluten and dairy... That alone has been a journey! I went to a whole food store bought alot of organic fruits and vegetables, washed and cut them all up and put them in individual bags and froze them... Now onto the next amazing thing... I actually feel better, energy wise but still like my power naps which have been a little shorter. I want to try to see if the new way in eating changes anything... I'm scared of what the future may bring... I've been a very active runner and I've slipped off the band wagon within the last year. I thought I was not allowing my body to rest... Ok, for my symtoms already.... About once a month for at least 2 years my left arm and leg get really weak and it feels like a noodle and very heavy, when I would go down stairs I need to tell my self left, right ect, balance ,wow is it off at times! , my spinal tap came back clear which was followed by a blood patch!!! Sensory test was inconclusive for whatever reason and the evoc test came back fine. Vision gets blury at times and I do get pain behind my left eye... my MRI's show lesions... I don't know what to believe or is it I don't want to accept this journey??? Feed back, please??? :-)
I am 37 years young have 2 children and have been diagnosed with MS a week ago today! I've been under tests for the last year and a half.
I'm still in denial I think and question if I really have it. I'm wondering if anyone else has experienced my symtoms and if your on treatment if so what treatment and how is it working? As for now I'm experimenting with supplements and trying to do better with not eating gluten and dairy... That alone has been a journey! I went to a whole food store bought alot of organic fruits and vegetables, washed and cut them all up and put them in individual bags and froze them... Now onto the next amazing thing... I actually feel better, energy wise but still like my power naps which have been a little shorter. I want to try to see if the new way in eating changes anything... I'm scared of what the future may bring... I've been a very active runner and I've slipped off the band wagon within the last year. I thought I was not allowing my body to rest... Ok, for my symtoms already.... About once a month for at least 2 years my left arm and leg get really weak and it feels like a noodle and very heavy, when I would go down stairs I need to tell my self left, right ect, balance ,wow is it off at times! , my spinal tap came back clear which was followed by a blood patch!!! Sensory test was inconclusive for whatever reason and the evoc test came back fine. Vision gets blury at times and I do get pain behind my left eye... my MRI's show lesions... I don't know what to believe or is it I don't want to accept this journey??? Feed back, please??? :-)
..I get the very heavy leg feeling and that is what I call the beginning of my 'fatigue'...
Comment