has anyone been diagnosed and treated for MS and then have the diagnosis questioned? i was diagnosed 2 years ago and treatments included avonex and neurontin. pain, fatigue and numbness issues sent me back to my neuro this week and he now questions the diagnosis and wants RA and lupus blood work done as well as my third mri.
After two years of treating me he is now saying that my lesions are "atypical" and given my age is not convinced they are MS related. He also is sending me to a pain clinic because "the pain is not typical of MS pain".I am so frustrated with this as he was the one to diagnose me initially and i have been through the many ups and downs of denial, acceptance as well as tests, tests, tests!
He has done blood work twice since my diagnosis and I dont think results can change?I'm sure all of us would rather not have ms but I'm beginning to almost wish they would just say yes you have ms and treat me rather than me have some kind of false hopes. My neuro is a MS specialist in my area but does anyone think I should go for a second opinion?
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
After two years of treating me he is now saying that my lesions are "atypical" and given my age is not convinced they are MS related. He also is sending me to a pain clinic because "the pain is not typical of MS pain".I am so frustrated with this as he was the one to diagnose me initially and i have been through the many ups and downs of denial, acceptance as well as tests, tests, tests!
He has done blood work twice since my diagnosis and I dont think results can change?I'm sure all of us would rather not have ms but I'm beginning to almost wish they would just say yes you have ms and treat me rather than me have some kind of false hopes. My neuro is a MS specialist in my area but does anyone think I should go for a second opinion?
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
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