I've been out of work since December, and for a while, I was looking for jobs while also waiting to hear back after filing for long term disability. When I started having more symptoms this summer, I quit looking, hoping to pick up where I left off when they passed (they haven't).
The only job I'm trained to do is one I can't (nursing). I can't handle being on my feet all day, and the types of nursing jobs that don't require that are hard to find, especially when you don't have the experience they're looking for.
I've accepted that I need to look for a sedentary job. The problem is, I've been having double vision since July that doesn't seem to affect looking at things close up, but it makes me scared to drive when it happens (usually happens every day but not all the time). My eyes also lose focus if I'm in a big room and I just have to wait until it finally goes away. I've also had a huge problem with fatigue for months now that requires me to take a nap pretty much every day. It normally hits after I've only been up an hour. How do you work, especially a sedentary job, if you get so tired that you feel lethargic every day and normally have to take one, and sometimes two naps a day?
I've also applied for SSDI and got denied very quickly. I really don't know if it's worth appealing or not right now, but I can say, based on what sources they stated they used, it makes no sense (looking at records that were from before I claimed that my disabling event happened, so of course I wasn't disabled back then. That's why I had a job). I'm still waiting to hear back about my appeal for LTD, but I expect it will be another denial as well.
I really don't feel like I'm ready to go back to work with my symptoms seeming like they're not under control at all, but then I can only go on for so much longer like this. Once I've run my parents' account dry, that's it. I'll lose everything, and that's not exactly what I want to happen either. I really have no clue how much longer I have (they haven't said anything), but it would be nice to get back in control of my own life eventually.
What do you do in a situation like this? I'm definitely doing much better than when my flare in December hit, but I still have a lot less strength than before any of this happened, and with my horrible fatigue, I don't know how I could handle a job. Plus, with the vision issues, I don't feel comfortable leaving my home half the time because it gets bad enough that I can barely see some cars when I'm looking to the side (but not a constant thing though).
The only job I'm trained to do is one I can't (nursing). I can't handle being on my feet all day, and the types of nursing jobs that don't require that are hard to find, especially when you don't have the experience they're looking for.
I've accepted that I need to look for a sedentary job. The problem is, I've been having double vision since July that doesn't seem to affect looking at things close up, but it makes me scared to drive when it happens (usually happens every day but not all the time). My eyes also lose focus if I'm in a big room and I just have to wait until it finally goes away. I've also had a huge problem with fatigue for months now that requires me to take a nap pretty much every day. It normally hits after I've only been up an hour. How do you work, especially a sedentary job, if you get so tired that you feel lethargic every day and normally have to take one, and sometimes two naps a day?
I've also applied for SSDI and got denied very quickly. I really don't know if it's worth appealing or not right now, but I can say, based on what sources they stated they used, it makes no sense (looking at records that were from before I claimed that my disabling event happened, so of course I wasn't disabled back then. That's why I had a job). I'm still waiting to hear back about my appeal for LTD, but I expect it will be another denial as well.
I really don't feel like I'm ready to go back to work with my symptoms seeming like they're not under control at all, but then I can only go on for so much longer like this. Once I've run my parents' account dry, that's it. I'll lose everything, and that's not exactly what I want to happen either. I really have no clue how much longer I have (they haven't said anything), but it would be nice to get back in control of my own life eventually.
What do you do in a situation like this? I'm definitely doing much better than when my flare in December hit, but I still have a lot less strength than before any of this happened, and with my horrible fatigue, I don't know how I could handle a job. Plus, with the vision issues, I don't feel comfortable leaving my home half the time because it gets bad enough that I can barely see some cars when I'm looking to the side (but not a constant thing though).
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