Hello everyone, my name is Suzanne and I have had MS since at least 1993. Like many of you, I had symptoms and testing for MS for 13+ years prior to getting a positive diagnosis 7 years ago. I've been through years of every test conceivable with -0- results, Drs. that treated me plum awful when they couldn't find answers and blamed me, a few more years of giving up completely and trying to ignore my symptoms cause "Hey, I'm the crazy one, right?" to finally "Huh! I'll be darned, your spine looks like swiss cheese on your MRI." (The vast majority of my MS is in my spine which was never checked on an MRI until the last one before my positive diagnosis).
I know from all the reading I've done here over the years that many of us have 'been there, done that' just trying to get to the point of "You do have MS". I know the frustrations and finally the feeling of vindication followed by the "Now what?"
I have followed this board for many years but have only recently gotten up the nerve to not only accept that I have MS but to talk about it with others.
For those of you trying to get diagnosed, hang in there. It can (and probably will) be the most frustrating thing you will ever face in your entire life. Do not let Drs. push you 'off', don't ever be afraid to fight for you life, health and well being. You are the only one who understands what's going on inside your body and you have to be your own biggest advocate in this struggle.
For the rest of us who have MS I can only say "Hang in there, I can relate and we're all in this fight together".
I know from all the reading I've done here over the years that many of us have 'been there, done that' just trying to get to the point of "You do have MS". I know the frustrations and finally the feeling of vindication followed by the "Now what?"
I have followed this board for many years but have only recently gotten up the nerve to not only accept that I have MS but to talk about it with others.
For those of you trying to get diagnosed, hang in there. It can (and probably will) be the most frustrating thing you will ever face in your entire life. Do not let Drs. push you 'off', don't ever be afraid to fight for you life, health and well being. You are the only one who understands what's going on inside your body and you have to be your own biggest advocate in this struggle.
For the rest of us who have MS I can only say "Hang in there, I can relate and we're all in this fight together".
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