Have you forgotten what life was like without MS?

[Kimba22]

I still remember what life was like prior to MS (hope to always hold on to some of those memories). That life is now just a memory, although I still hold out hope in my lifetime those with MS can be "fixed." In the meantime, I try to make the most of each day. It can be hard, but beats the alternative.

It's been a 17 year journey since my first symptom, and it hasn't been full of rainbows and sunshine. I've definitely struggled with my illness. There's so much I always thought I'd be able to do with my life, although the absolute hardest has been that my children have to deal with a sick mom so much of their lives. Doesn't help that our finances have been affected, either. Not only with the expense of this illness, but that I had to go on disability very early on in my career.

I think the hardest part of a chronic illness/ debilitating injury is knowing what you lost. You wouldn't be able to compare notes, so to speak, if you were never healthy.

[venice]

I find these posts vey sad. And scary.

[ms man]

I find these posts vey sad. And scary.

And very truthful.

[DianeD]

Never forgotten~

I was 50 when dx'd 19 yrs ago. I seem to feel the chasm that has been created between 'normal' and now, even more acutely as time goes by.

I have RRMS (supposedly) but it sure feels worse. Lately my symptoms are worse than I ever remember them being and I find myself much shorter in patience, with little or no optimism, just a kind of resignation.

I'm still on my feet, but struggling. I try to join in things but it is really not easy and sometimes ends badly. I'm not feeling very upbeat, but I don't mean to discourage people. My MS is 'my' MS. I own it and really no two people with MS are alike.

I do feel that my MS has worsened after beginning a DMD 3 years ago. For some people it works; for some not so much.

Diane

[ms man]

I was 50 when dx'd 19 yrs ago. I seem to feel the chasm that has been created between 'normal' and now, even more acutely as time goes by.

I have RRMS (supposedly) but it sure feels worse. Lately my symptoms are worse than I ever remember them being and I find myself much shorter in patience, with little or no optimism, just a kind of resignation.

I'm still on my feet, but struggling. I try to join in things but it is really not easy and sometimes ends badly. I'm not feeling very upbeat, but I don't mean to discourage people. My MS is 'my' MS. I own it and really no two people with MS are alike.

I do feel that my MS has worsened after beginning a DMD 3 years ago. For some people it works; for some not so much.

Diane

It's encouraging to hear that somebody is still on their feet after 19 years of MS.