For those of you that have experienced more difficulty walking after starting Tecfedera you might find this interesting. I think two things have occurred with me since stopping Tysabri and starting Tecfedera. One, I have heard for several years that if you use Tysabri and then stop your MS symptoms will ramp up quickly, I believe this is true. After taking Tysabri for 5 years and knowing that I am JC positive my neurologist said I measured JC+ at 4.9, they want you at .9 or lower. So my Dr. wanted me to stop Tysabri and start Tecfedera.
About a month after the Tysabri wash out period I noticed my MS symptoms were getting worse (walking fatigue etc). Once I started Tecfedera I noticed my symptoms seem to be getting even worse.
I have been on Tecfedera for four months now. Last Saturday I stopped taking Tecfedera and during this week my symptoms seemed to be improving (walking fatigue etc). Today is Saturday one week from stopping Tecfedera I started taking Tecfedera again. Within an hour I started flushing and approximately 6 hours later I can tell, walking is becoming more difficult. At this point I'm not sure what to do, wait for Lemtrada (Campath) I guess?
For me the take away from this is, think long and hard before starting either of these drugs and have a conversation with your Dr about these issues.
About a month after the Tysabri wash out period I noticed my MS symptoms were getting worse (walking fatigue etc). Once I started Tecfedera I noticed my symptoms seem to be getting even worse.
I have been on Tecfedera for four months now. Last Saturday I stopped taking Tecfedera and during this week my symptoms seemed to be improving (walking fatigue etc). Today is Saturday one week from stopping Tecfedera I started taking Tecfedera again. Within an hour I started flushing and approximately 6 hours later I can tell, walking is becoming more difficult. At this point I'm not sure what to do, wait for Lemtrada (Campath) I guess?
For me the take away from this is, think long and hard before starting either of these drugs and have a conversation with your Dr about these issues.
Comment