Urgent: UTI won't go away after almost 2 weeks--please help!

[maitrimama]

I Promise You This

Emily - Children that come from loving homes are incredibly resilient. I suggest youu be honest with Ellie at a 1st grader's level. She sees and feels what is happening and in order to trust her own instincts as she grows she needs to be validated. She will ask the questions she needs answers for and there is no need for you to elaborate further.

My daughters are now in high school & despite my health issues (including hospital stays) loss of several family members & their dad and I getting divorced they are amazing young ladies. No surprise that their friends often turn to them when they need someone to listen.

You can tell how much you and your husband love Ellie. You need to take care of yourself so you can be the best wife and mom possible.

I'm praying for strength & courage for you all to get through this terrible time - M

[Emily74]

overtaking meds question and also possible kidney stone?

Thank you all so much for staying with me and writing me back and keeping me in your prayers. I am praying. I am thinking maybe this means I wasn't meant to go back to work, that I was meant for something else.

The urologist I am supposed to see tomorrow isn't based in our town--apparently he comes in to the medical plaza once a week to see patients here, and my PCP said he wasn't taking new patients, but I got the appointment, and maybe tomorrow it will work. There's only about 15 hours Left.

But I overtook the belladonna. i was in awful pain again and I thought I did not have the willpower to not ask my husbaznd to take me to the ER, so I looked up googled the belladonna opiate suppository and it said not to exceed 4 doses daily. I already took one, and about a half an hour ago I took another, and I was thinking if I wok up miserable at 4 am I might take another. i hope this is not dangerous--I just need some relief so much.

I was looking at your posts and someone asked if I'd ever had a kidney stone. I have not but my Dad gets them repeatedly. He got one when I was a kid and it was so bad he had to be driven to "the big city hospital." He was there for three days and I remember Mom saying something about them having to "take it out."

I thought maybe because the pain location has moved it could be a kidney stone that is moving. I asked my PCP and he said the scan would have caught it, the one I got Aug. 14 (I think--I'm messing up dates). But they did not scan my bladder--the scanned my kidneys and abdomen. No one has scanned my bladder, or looked in it yet--the nurse practitioner at the urologiss office did the ultraound with jelly and it was over pretty quick.

Am I grasping at straws here??? Is it possible it is a kidney stone? I need to google where exactly the bladder is and if it is possible that the CT scan didn't see the bladder. But I took that belladonna and now I can barely keep my eyes open. I aplogize for the spelling errors. . .

Oh, I am praying that tomorrow I can get some hlep. Thank ou so much for staying with me.

Emily

[brothrgoose]

PLEASE contact me

I have posted abd they don't show up which is COMPLETELY out of character for this site.
Your options seem limited where you are, but I really believe I can help you!

FMLA. ?.all that garbage...they tried it on me too!
But, I really think i can get you felling better!

Please let me know...my email is available....please hurry and respond!

[SNOOPY]

Hi Emily,

I am starting to wonder if you are having bladder spasms. I am a little surprised your neuro didn't consider bladder spasms

Do you have a muscle relaxer (Baclofen, Flexeril, ect.)? If not please discuss this option with the next medical professional you see.

Take care

[abeautifullife]

So sorry about your situation. Try getting tested for leptospirosis - it might explain your symptoms and is the typical "swimming in the lake" summer disease. It really nails the kidneys and causes pain, fever, and reduced urine output.

[KatieAgain]

Emily-The best thing you can do is contact BrothrGoose, who is an RN and offered her services. The rest of us can only give you best wishes...which is not helpful at this point.

The job stuff can wait until later...future post.

You need professional help and it needs to be done quickly.

[Kimba22]

Hey there brothrgoose

I just checked your profile and don't see your e-mail. Please recheck it and make sure it's there so Emily can contact you.

Emily

OMG ... I'm SO sorry you are STILL suffering! I agree with Brothrgoose about stopping the Bentyl ... the pain medications alone are very constipating!!! (You need to try Miralax to help with your constipation) Constipation is going to hinder your ability to pee, and you most certainly don't need that!!! Your body might be 'adjusting' (I know that's not the right word) to, metabolizing - maybe?-, the pain medications, which is why you aren't getting enough relief now.

Did you ever hear from the urologist about the results of your culture yesterday? If you really don't have a UTI, it won't be long until you do again if you can't drain your bladder!

From your posts, it doesn't sound like a urologist ever saw you in the ER. (They usually don't if you are in ER - they'll see you if you're an inpatient) That IS who needs to see you and run tests. Did you go to a big hospital this last time?

Maybe you do have cystitis. If so, sounds like you are going to need several 'procedures' before this is under control. You certainly do sound like you have a neurogenic bladder. Besides a kidney scan, you should get a bladder scan. I wish I could say there would be a quick fix, but sound like it's going to take various tests to determine what is really wrong with your bladder.

I know you felt majorly brushed off when you saw the last urologist. I'm not excusing this, but specialists are known to only give you 15 minutes. I've had neurologists give less than 5! (Needless to say, I moved on.) A good one should give you more time if you need it, but that is beside the point right now. I hope the urologist you see today has some answers for you.

Click on brothrgoose's name and hopefully she has put her e-mail in her profile. I really hope she can help you!

(I hear you loud and clear about all the havoc a seemingly innocent UTI can cause!)

I hope this gets solved, soon! You've been suffering too long! I feel so bad for you with both this & now worrying about your job on top of it. (Hmmm ... do you belong to a teacher's union?)

Get well, soon!

[Emily74]

brothrgoose's email--and thank you

Hi everyone, Thank you all for your help.

Brothrgoose, thank you for offering to talk to me over email. I can't find your email though. It could be that I'm just on pain pills and fatigued and in a lot of pain. Can you let me know where I can look?

to you all

Emily

[Sissy]

Snoopy!! HI!
That is what I said earlier! My "BLADDER SPASMS" became so bad that I would have had to improve to die!! I took so much belladonna and AZO stuff that I was literately seeing yellow..
I finally took some"SOMA" and I was so much better!! I could not believe it!!

[Sissy]

OOP'S!! EXCUSE THE LAST PART OF THAT POST! I got confused abt what I was writing!!!

I meant what I said about the spasms thought! I agree with what snoopy said! THAT IS EXXACTLY WHAT MINE WAS!

[KatieAgain]

Hi everyone, Thank you all for your help.

Brothrgoose, thank you for offering to talk to me over email. I can't find your email though. It could be that I'm just oun pain pills and fatigued and in a lot of pain. Can you let me know where I can look?

to you all

Emily

Emily, when you log in, you can hit the writers username and it brings up his or her profile. However, I just did that and you and Kimba are correct...no e-mail to Brothergoose. I notified admin, and I am hoping in turn they will let Brothrgoose know so you two can get hooked up. Don't know if they can do that.

BTW, something which Kimba said...What happened to the results of your positive urine culture. They were suppose to grow it out right? If I remember correctly, those results were suppose to be back on Monday.

[brothrgoose]

HUMILIATION NATION! !!!!

I am SO embarrassed! !!!
An admin contacted me that my mail wasn't on my profile...I must've not hit "save"!!!!

Thank you to all for noticing! !

[brothrgoose]

Emily,

I may be talented in some things....it would seem I have found a weakness.
I checked my profile again as another user of this site would....I don't know what I'm doing wrong!!


I never claimed to be computer savvy!

**Email address removed by Moderator in compliance with MSWorld Guidelines. This may be put in your Profile for all registered, logged-in members to see. Go to UserCP > Edit Details**

[brothrgoose]

FINALLY

My "cattle call" desperation post hasn't hit the board yet...but I finally figured out how to get my e-mail incorporated into my profile.
I have this address on my smart phone (first one)...I have the next week off for the holiday. .. (it's a 'budget' thing for the hospital because the census is low)
Emily, I will be looking for you!
Let's try to get you some well-needed and deserved relief!!!

[Emily74]

still here--thank you for being here

Hi everyone,

I'm still here. Thank you Kimba and Katieagain and Brothrgoose for getting Brothrgoose's email up.

Brothrgoose, my husband sent you an email this morning, he said. (And please don't be embarrassed about having a hard time getting yours up--believe me, it's my students who teach me anything new to do with technology!)

He was very distraught because I had a very bad yesterday/last night/this morning and I didn't have the strength to do anything but start using up the rest of my Belladonna and sleep. It's giving me about 3 hours of sleep now.

Thank you all so much for your advice. It was a bad visit to the local uro yesterday. The nurse used some kind of beepy thing to measure what was in my bladder but could not find it (my bladder, that is!). Then the urologist came in and he said he thought I had endometriosis but if I "really wanted him to look in my bladder he could do it on Sept. 8." I was in so much acute pain by the time we got out of there that I took my pain meds and we came home and just took care of our girl and didn't talk more about a solution.

But Kimba, you are right--I've never gotten a full bladder scan, and I guess it worries me that this woman couldn't find it yesterday.

I could barely sleep last night and this morning after Ellie went to school I took more Belladonna and slept 5 hours--so I am feeling like a new woman, (though still in unrelenting, excruciating pain--it's just that with 5 straight hours of sleep the pain is so much more bearable) !!!

While I was sleeping my husband called my neuro to get in today. He told me when I woke up that he told my neuro's nurse that I was having trouble walking and "slurring my words." I didn't know I was slurring my words! I knew I was having trouble walking because I can't stand up straight from the pain. I am worried about the word slurring--but I'm thinking that may be from all the Percocet and Belladonna? I hope!!! When I am not in crisis and you do get to know me better you'll find I love to talk.

The neuro never called my husband back, and my husband called back twice this morning. Brothrgoose, that's when he emailed you, I think. When I woke up he was sitting next to the bed crying saying "I don't know how to get you help." It just broke me apart. This is a man who does not cry.

I did stop taking the Bentyl, and oh, ow awful and embarrassing this is, but I woke up this morning having gone poop--luckily, I was wearing the adult diaper. But this hasn't happened before either, and it was a horrible feeling.

I woke up from my 5 hour sleep and Ellie is still in school and I told my poor husband to eat some lunch--he hasn't eaten. I haven't been able to eat since I had some triscuits last night, and I can't remember before that. It's really hard to eat in this much pain. I'm hoping I can go in and get down some chicken broth. Since my neurologist hasn't called my husband back I told my husband that I would call him and try to get an appointment for tomorrow or Friday--I want so much for it to be before the weekend.

I feel really strongly--and have felt--that I needed to be admitted to the hospital especially now that it is getting hard to pee, control my poop, walk, and apparently speak clearly!!! But we have learned from our ER visits that they won't admit me because once they give me the IV pain meds I perk right up and then they say it's not an emergency. I totally sympathize with that, but this is feeling like an emergency to us.

And thank you for asking about the urine sample from the urologist on the 21st that prevented the cystoscopy. I called and called and finally got the results yesterday morning from the nurse and it was positive for "nitrates" and there were also ketones. But I have given 3 urine samples since then, in the ER on the 23rd, at my PCP on the 26th, and at the local urologist on the 27th, and they all say it's completely lovely beautiful urine (I just wish I didn't have to sway back and forth on my potty and have water running and count and talk to it to get it come out.

Oh, I just don't know any more--I'm high on having gotten sleep, finally, 5 straight hours, and so I feel happy even though we haven't made any progress.

Kimba, thank you for asking about the teacher's union. We are in a non-union state. We are both English teachers. But my husband was meeting with HR yesterday to get his job reinstated, and we think it will work, because she said he was eligible for FMLA.

Brothrgoose, if you got the email from my husband, we would be so grateful if you would write back--and if you didn't, let me know and I'll figure out how to get on here and get mine on here. Thank you so much.

Thank you all so much.

I am going to call the neurologist again and try to pee and have some chicken broth.

Honestly, it is so bizarre, to go from working full-time and being a mommy and wife and having a social life to having neurologist/pee/chicken broth be your goals for the day.

OK--this is probably the limit to my good cheer--I feel myself backsliding and need to give my husband the rest of my good moments.
to you all for listening and supporting me. I am hearing you. I know I haven't had a chance to thank all of you for your suggestions and kindness by name, but I have heard you and I love you for it. Emily