My neuro and I were going to discuss me going on BG12 at my recent appointment. When I got there he said that there had been one death of a patient, but that it was still being investigated. Did anyone else hear about it? I was frozen. I didn't ask if this was the dreaded "PML" thing, but said I will stay on Avonex until I know more.
I just emailed him to ask if he could send me an article or something on it. At first blush, my doctor did seem to indicate that he thought the death was due to the drug rather than "something else". He agreed that I should probably just continue on my Avonex and that he has pretty much given the same advice to other Avonex users who seem to be pretty stable and can live with the whole shot thing (I can).
Bummer. I thought this was a drug that was around for a long time in Germany to treat psoriasis. Did they tweak it too much when they decided it would be a good drug to give us MSers?
I just emailed him to ask if he could send me an article or something on it. At first blush, my doctor did seem to indicate that he thought the death was due to the drug rather than "something else". He agreed that I should probably just continue on my Avonex and that he has pretty much given the same advice to other Avonex users who seem to be pretty stable and can live with the whole shot thing (I can).
Bummer. I thought this was a drug that was around for a long time in Germany to treat psoriasis. Did they tweak it too much when they decided it would be a good drug to give us MSers?
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